Get well soon Paul!

2011-05-18T09:15:00.003-05:00

Paul's intense therapy continues... the good news is that his speech is getting better all the time though still baby steps as opposed to huge strides. And, with the harness and treadmill, he is able to practice walking every day and we are seeing improvement there too. Again, it is a long, long and very hard road but Paul is determined as ever. Please check out the link below to see see a video/photo montage of a recent treadmill workout put together by our good friend, Pete Lacker.

http://www.youtube.com/watch?v=R5EIoDF7QlE&feature=youtu.be

Thank you all for checking in!

Patty
patty.jerde@yahoo.com

New Year, New House, New Equipment

2011-02-03T23:05:00.002-06:00

It has been a busy five months since I last posted on the blog. In October, some wonderful friends of ours put on a second Jerde Cup and it was amazing. Rosemary Westerhuis and Anne Clarrissimeaux were the main organizers and they did a great job putting together the tournament, which was at Hackberry Creek Country Club in Irving. They left no stoned unturned when it came to organizing it with great goody bags, cool Jerde Cup hats, and a raffle with many fun prizes, including an iPad and a Behind-the-Ropes with David Feherty, which was the chance to hang out with golf commentator David Feherty behind the ropes at any PGA Tour tournament. A friend of ours, Reggie Cusick, actually won the Behind the Ropes prize but, being a PGA professional himself and already having experienced being behind the ropes several times before, Reggie generously put the prize on the auction block and it was auctioned for $500. It was the grand finale to a beautiful day weather-wise but also one of friendship, family, fun, and a lot of goodwill. The best part though was that Paul was able to participate somewhat. Our friend, Gary Pickle, who oversees golf for RISE Adventures, brought the golf cart that Paul had been practicing with all summer so that Paul could use it while hitting on the driving range and then he played a couple of holes with his old golf buddies.

There were so many great and touching moments during the tournament but I would say the best part for me and for Paul was just seeing all of our friends and knowing that after 2 1/2 years, so many people still care and are supporting Paul and his efforts to continue to recover. And, the tournament raised a lot of money that has gone and will continue to go toward Paul's recovery for a long time. We are so thankful to have so many caring and generous people in our lives.

Around the same time as the Jerde Cup, we were blessed in another way when we were contacted by Bob Green, whose son goes to school with Buzz. He had been following the blog and had seen our last post that mentioned we were looking for a facility that has a treadmill with a harness. He didn't know of a facility but he had an even better solution. He works for a company called Associa and they have a foundation, Associa Cares, to help people in need. He told us that the foundation would donate funds to pay for the equipment with the harness, called a Biodex, that we needed. I was completely surprised and overwhelmed because this equipment is not cheap but also so happy because, as I have said, the key to Paul walking is repitition and practice. It was like a dream come true and so kind of Bob to even think of us for the donation. The one caveat was that, in order for the equipment to fit in our house, we would have to have at least 9 foot ceilings, which we did not.

However, it was also right around this time that my sister, Amy, was working with someone who had bought a house conveniently located much, much closer to most of my family, and was renovating the house with plans to put it right back in the market. Not only does the house have really tall ceilings but a perfect "workout" room for Paul's equipment. And, although we loved Lake Highlands and never planned on moving north of LBJ, it seemed like God was trying to tell us something so we put our house on the market, sold it to a young couple about to have a baby (which made me happy because I felt like I was passing on the baton), and moved into our new house Dec. 18. It was a whirlwind few months but things are now beginning to settle down. Buzz is continuing in the same school so, aside from having to wake up 30 minutes earlier so we can make the longer drive, his world hasn't changed too much.

We now have the harness but have not been using it yet as, because Paul is so tall, the vendor is readjusting some handrails that are necessary to help Paul stand up straight while he is walking. As soon as we get everything tweaked, we will be posting some photos of Paul walking with it on the blog and on both of our Facebook pages. We are going to work hard in 2011 to get more connected to the outside world and engage our friends in exactly what Paul is doing to get better. It is a complex recovery that obviously is a slow process but that will only happen if Paul continues to challenge himself, and that includes in communicating with others.

For us, 2010 ended with a bang - lots of changes but all good and all propelling our forward momentum into 2011. We are so lucky to be surrounded by so many caring, supporting, and loving people that believe in Paul and will do, it seems, anything to help us. It is amazing to experience and we are thankful every day!

What Paul Did This Summer

2010-08-22T23:27:00.010-05:00

Paul's therapy has continued throughout the summer with walking on both the treadmill and with his Rifton Pacer Gait Trainer; speech three times a week, physical therapy, and now even a personal trainer to help work on his strength and balance. In addition to walking in therapy, he walks several times a week with the walker on an indoor track. Some days Paul does great, and other days are really hard but he never gives up and never wants to stop until it is the point where I have to encourage him to rest or, I am afraid, he will pass out. Our real challenge now is finding a facility that has a treadmill with a harness (which helps him balance) that he can use as much as possible. I feel like this is a key to his walking; that he walk as much as possible as often as possible. If anyone has any information on a place that has this type of equipment and would be open to Paul walking there, please let me know.

We also tried to incorporate some leisure activities into the mix to keep things interesting for all of us but mostly because everything that Paul does new and different is going to "work out" his brain and help him heal. Through the RISE Adventures program (the non-profit that offers golf), we were able to enjoy a couple of picnics at Grapevine Lake that included some water sports.

As soon as we got to the first picnic, the volunteers were quick to get Paul in the water and on a waterski tube. He said it was fun but didn't push to do it again when the opportunity arose. (I don't think he is a lake person. I know that I am not.)

Buzz, on the other hand, had a ball. He also rode on the waterski tube, swam in the water, and kayaked. The above photo is on the sailboat. Paul and I were there too, although getting Paul in and out of the boat was quite a challenge and almost comical at times. I was too busy holding on and worrying the boat would overturn to take more photos. Again, not a lake person. The good things about the lake excursions are that Buzz had a great time and it was something that we could do as a family and laugh and talk about afterward.

We also spent an afternoon at the Fort Worth Museum of Science and History where we saw an interesting exhibit on Leonardo da Vinci.

Paul practiced some golf this summer (although the heat kept us from going as much as Paul would have liked), went swimming quite a bit, and worked on a little bit of design on the computer. He also is really into working the daily crossword puzzle.

As his physical therapist keeps saying, "His brain is only going to learn things through repetition, repetition, repetition." So, the key is discipline and focus right now. I have to keep Paul from getting sidetracked. Back in the old days, I was the one who was easily sidetracked so it is my turn to keep Paul in line and working on those things that will help him as he continues his road to recovery, which is a very, very long road but there is a destination and each day he gets closer to it.

Thanks for reading!
Patty

Jordan 63, Jerde 62!

2010-04-26T08:56:00.002-05:00

Remember when Michael Jordan scored 63 against Bird and the Celtics? This past Saturday Paul Jerde scored a record 62 baskets in one stretch of shooting. Without resting or taking a break, Paul broke his own record of 56 (which he made taking some breaks in between). Several times he made at least 5 in a row, and at one point he made 9 in a row, till someone (who shall remain nameless) jinxed him by mentioning the streak. Paul's balance was also much better this last week, and was almost standing on his own for a few shots. Great job Pablo!!

Air Jerde, anyone?? :-)

Willie

2010-04-07T10:32:00.009-05:00

I can't believe it is April already. Things have moved pretty fast in the past few months. Paul left Baylor in February and no longer is in an all-day neuro program. However, he does have therapy every day and continues to work very hard on his recovery.

Since leaving Baylor, he began working with Karen McCain, a physical therapist at UT Southwestern. She is a big believer in using a body-weight supported treadmill to regain walking and that repetition is the key. The treadmill Paul is using has an overhead harness system that provides partial body-weight support, which gives Karen the freedom to help guide his feet to ensure that he is walking correctly. Prior to this, Paul was practicing walking with a quad cane and assistance from a therapist, which I believe only made him overcompensate in ways that weren't beneficial to him and never really triggered his brain to figure out what it needed to be doing in order for him to walk without assistance.

One thing that I have learned since Paul's accident, as I am sure anyone has that has dealt with a serious health issue, is that medicine is an art as much as a science. And, that brain injuries are like snowflakes and each one is different. There are so many solutions and routes for us take and we have to constantly research our options, look at other cases, and read the latest news on traumatic brain injuries and to always be monitoring whether what he is doing is working for him. It is much like networking when your are looking for a job. You just keep your eyes open and talk to everyone that you can. (Not that I was ever great at networking. That was always Paul's forte but I am learning and much more passionate about Paul's recovery than I have ever been about working.) I am, however, a big believer in the power of forward momentum so as long as Paul is showing any improvement at all, no matter how small, we will keep moving forward, even when it takes us to a few deadends, we always seem to learn something new.

In fact, we came about working with Karen McCain because a friend of Paul's sent a YouTube video of another brain injury patient working with her and, in the video, she was talking about the very same walking techniques that Lisa Ann (our other PT therapist) had been pushing and that I have read about a lot but we didn't have access to the equipment. I contacted Karen after watching the video and she was great, talked with me about Paul for quite some time, and now is doing everything she can to help Paul walk again.

In addition to Paul's physical therapy, he is involved in a speech program through the University of Texas Dallas called the Callier Center. Three times a week, he participates in group therapy and also has one-on-one therapy with speech therapy students who are working toward their masters and certification. It has been a good social outlet for Paul and, his speech also continues to improve little by little. He isn't speaking in full sentences but has gotten much better at getting out one or two words that help him communicate without always having to rely on the Dynavox. This has been a great because he can interact more with Buzz, even if he is simply telling Buzz to "move back" when Buzz is too close to the TV. It is the small milestones that make me grateful these days.

Paul also is back on the golf course, sort of. Each Saturday, there is a clinic, through an organization called RISE Adventures, at Dallas Golf Center off Walnut Hill and 35. It is very secluded and off the beaten path. The first day that we went, I felt sure that we would either find the golf course or were being set up to be killed. Fortunately, we found the golf course and Paul has been working with a golf pro, Gary Pickle. Right now, he primarilly is on the driving range sometimes just hitting while he is sitting in the wheelchair but sometimes standing with assistance. Gary makes custom golf equipment for people who have physical challenges and has made a club, with a special grip, that Paul can use just using his left hand (as he still cannot use his right hand). Gary also has a special golf cart that Paul can drive right onto the course and turn the seat and putt or hit while still sitting. Of course, it is not the ideal situation and the goal is for Paul to get his game back as close to normal as it was but we have to take it slowly and, again, figure out the best way to get there. It is still nice to see him back on the driving range, especially when he is alongside Buzz, who, I have to say, has a pretty good swing for a 7-year-old.

Back at Baylor - But Not For Long

2010-01-21T11:18:00.007-06:00

Paul is back at Baylor Rehab where he was about six weeks after his accident. He had been at Pate for more than a year and we decided a change of venue and environment would be a good thing for Paul at this time. (In addition, the decision had to do with insurance and some assistance we are receiving from DARS, the Texas Dept. of Rehabilitative Services, which is a godsend for people who have received brain injuries and, from what I hear, is unique to Texas).

Leaving Pate wasn't easy for Paul but it was ulimately his decision and he knew it would be a good thing for him. He had become very close with many of the therapists and members of the staff (pictured in the above photo) and felt comfortable, although sometimes bored, being there everyday for so many months. His last day there
was Dec. 23 and, as his family was in town for Christmas, the transition turned out to be fairly easy. He started at Baylor on Dec. 28 and it was quickly apparent that Paul thrives when he faces new challenges and wants to impress new people (some things never change). That said, he will only be at Baylor Rehab full-time for a short time, through February maybe. So, right now, we are looking into some options as to what Paul can benefit from next. Most likely, he will continue with physical and occupational therapy sessions there a few times a week and we'll get additiona therapy for him elsewhere.

In addition to basketball, Paul has been playing table tennis. We upgraded from ping pong when Paul began weekly visits to the Dallas Fort Worth Table Tennis Association's practices so he can use their Robo-Pong. It's kind of like going to the batting cages. The machine just shoots out balls for Paul to hit, holding the paddle in his right hand. The group has been wonderful in working with Paul to try to help him as much as possible. They even took photos of him and featured him on their Web site with a story about him. Pete Lacker came with us to one session and took above photo of Paul hitting the ball while standing, with some assistance. For us, going to table tennis has been a family affair. While Paul practices, Buzz takes a lesson, and I get some exercise by running around picking up all the runaway balls. It actually is quite an experience and, for anyone that likes playing the game, I recommend you come one evening as there are probably 9 or 10 tables set up with people at all skill levels challenging one another for play.

Paul currently cannot walk on his own, although we still see improvements and recently came across a new type of walker that, hopefully, will help him regain that very, very important function. We are looking into purchasing the equipment for him as soon as possible and working with new therapist who has seen positive results with other patients. Although the baclofen pump has helped somewhat with his spasticity and tone, he still fights his muscles contracting and tightening when he exerts himself (walking, standing). Paul is at a high dose of baclofen right now and the doctor increased it last Friday, which ended up being too much for Paul. Throughout the weekend, he was confused, emotional, had trouble verbalizing at all, and was very weak when it came to walking and standing. Monday morning, we were back at the doctor's so that he could decrease the dose in the pump back to what it had been the previous Friday. It has really taken all week for Paul to get that extra medicine out of his system and now seems to be back where he was. Sigh of relief. That experience served as a reminder to how far Paul has come.

In addition, Paul's talking continues to improve too, although still very slowly. It is always baby steps but if he continues stepping, eventually he will get to where he wants to go. He also is getting better at using the Dynavox to spell out what he can't say so, overall, he is communicating better and better each day.

Paul has improved so much cognitively and is becoming more interested in doing the things that he did pre-accident. As you can see from Willie's post below, he has been going to the basketball court and practicing his shooting. He also has been reading more, something that took a long time for him to get back into. The first full book he read was Cormac McCarthy's "The Road," which is kind of a downer as it is about the apocalypse but what he chose to read. I probably would have picked something a little bit more uplifting but to each his own. Other activities he does more and more are painting (he and Buzz have their canvases side-by-side on the wall); working a little bit designing on the computer, listening to music, watching "The Office" (Willie lent us seasons 1-4 so we went on a binge a couple of weeks ago), and playing table tennis. He also still has his sense of humor.

As I said, I am excited about the prospect of this new walker for Paul so I will keep everyone posted on that and as to what Paul's next steps (both literally and figuratively) are after he leaves Baylor. It will be a change for us as Paul has spent the last 19 months in rehab full time but there are many opportunities out there for him to continue working and healing so I am optimistic about what the future holds.

Thanks for reading!

Patty

He shoots, he scores! :-)

2010-01-17T17:41:00.005-06:00

Happy new year!

For the past several months Paul has been going to visit his old basketball gang on Saturday mornings. Although he's still not able to stand on his own, he is able to stand with support and use his left arm to shoot baskets. The first time he went back he shot over a hundred shots and made one. The next week he made two, then four, then eleven. This past Saturday he made 38, and his best week ever was 44! The guys have been giving him lots of encouragement, which of course includes some good natured ribbing. Paul claims next week he'll make 50. :-)

Paul consistently inspires me. Onward and upward!

Willie

the putt

2009-11-03T18:04:00.001-06:00

the putt from Willie Baronet on Vimeo.

A few months ago Paul took up a golf club for the first time since his accident, and this is a little movie about it. :-)

We're Still Here and Still Working

2009-09-12T10:11:00.007-05:00

It has been nearly two months since the blog was last updated, and I apologize. I am not sure how the time passed so quickly but I guess we've been really busy. Although the summer has gone well, it also has been hard. Paul still struggles with talking, walking, and use of his right arm. Not to mention that he is burnt out on being at Pate. Everyone is great there but the every-dayness of it has gotten to him, especially because he hasn't seen the progress that he had hoped for and expected. So, while he will continue there because they are good, he needs to keep working, and insurance continues to pay, I am always looking for alternative therapy options that will help him.

I recently applied for Paul to participate in an intensive aphasia therapy program at the Rehabilitation Institute of Chicago, which is the No. 1 rehabilitation hospital in the United States. In speaking with the director of the program though, we determined that the program is not appropriate for Paul's needs. The aphasia program focuses mainly on language comprehensive. Paul does not have a problem comprehending language or retrieving language, his speech deficit is apraxia, which means he has trouble coordinating his muscles to make purposeful movements - in this case it is saying the words. He has no trouble comprehending and his master of the English language shows when he is using the letterboard and the Dynavox. Although Paul will not be participating in the aphasia program in Chicago, the director of the aphasia program thought that Paul might be a likely candidate to participate in other therapies that RIC offers so we are looking into that. As well, she passed on some names of researchers and therapists here in the Dallas area that I have contacted. So, there are options and opportunities out there, we are working on finding some that fit Paul's needs. I have to say though, everyone that I have talked to has been very kind, interested, and generous in sharing any information that could help Paul.

Several months ago, an acquaintance of Paul's, Michael Langley, contacted us to suggest that we call a therapist that he knows named Lisa Ann McCall, who has more of body/balance philosophy than traditional physical therapies. I finally contacted her over the summer and she has been coming to the house to work with Paul a couple of days a week and she has been great. She is very optimistic, energetic, and upbeat and has been teaching us ways that Paul can easily do therapy at home and incorporate it into our everyday lives. For example, we now have Paul holding a ping-pong paddle with his right hand and hitting ping-pong balls. He can easily do this while he is sitting on the couch. It is often a family affair, with me tossing the ping-pong balls to Paul, who hits them and Buzz has his own paddle and tries to then hit Paul's ball, which can go anywhere in the living room. The ping-pong balls end up all over the place but it is fun and something we can do as a family. Lisa Ann also has us making sure that Paul always is doing something therapeutic, even if he is doing it while he is watching TV. When he watches golf, we try to make him hold a golf club, which can be difficult with his right hand, and practice putting from a sitting position. She just believes the motion of doing something, especially something his brain is so familiar with (golf) that it will trigger the neurons to create more pathways. She also has suggested some different leg exercises and stretches that will help the spasiticity. We always both feel very optimistic after sessions with Lisa Ann. (Michael, thank you for the suggestion.)

As for his talking, Paul can say words more spontaneously and can repeat phrases but we still rely primarily on the letterboard and Dynavox. In fact, we are pushing him to use the Dynavox more because 1) it has word prediction so the more he practices using that, the faster he will be able to communicate, 2) he can sometimes say a word more easily if he sees it written down first, and 3) if he can't say it by reading, it is always good for him to repeat it once he has heard the Dynavox say it. The Dynavox also gives him some independence in that he can spell out what he wants to communicate without having to have someone there to spell out each word with him, as he does on the letterboard. I am all for that, because it gives both of us more freedom.

Paul still is not walking on his own, although we continue to see progress, albeit small but still progress. It is very frustrating for him because that has been his main focus. His therapists have suggested that, while he should continue working on walking and always have that as one of his goals, in the meantime, he also needs to become more independent while he is in the wheelchair. We all set our sights on the walking so, in the meantime, I've been doing more for Paul than I should and now have to push him to do more everyday things on his own at the house.

Buzz is now back in school and I am working part-time at ClubCorp, where I used to work prior to Paul's accident. So far, it is working out great for me because I can work mostly from home. However, since ClubCorp is located right across LBJ from Pate, on the days that I do go to the office, I can easily go by Pate on the way home and get Paul.

Well, I think that is enough for now. Once again, I am making a commitment to update the blog more often so, as Willie says, it doesn't turn into me writing a book each time.

Thank you all for your support and for following Paul's recovery.

More highlights from Paul's birthday!

2009-07-16T12:45:00.004-05:00

Paul's Thursday night men's group had a belated celebration in Paul's honor. Here are some of the highlights!

Paul's very special hat.

Cake! Marc, Shane, Tom, Gary and Sandy dig in.

Paul gives a thumbs up that Ed is still older than he is.

Streamers galore.

Paul hugs Jeff, who is also still older than he is.

Sugar crash.

Blowing out the candles.

Surprise!

George "helps" with the decorations.

The gang.

The not so reverent gang.

Older, wiser, and damn good looking! :-)

2009-06-30T19:10:00.002-05:00

HAPPY
BIRTHDAY
PAUL!!!!!!!!!!!!!!

June 21 - Father's Day

2009-06-21T22:13:00.004-05:00

It has now been over a year since Paul's accident. Officially, it was last weekend, since it was June 14, but for me, this weekend has really felt like the anniversary. When Paul was in the accident it was the Saturday of Father's Day weekend AND of the U.S. Open golf tournament, which is like the Super Bowl weekend at our house. I remember the Thursday night before the accident, I had my book club. When I left the house around 7:00, Buzz and Paul were eating pizza and watching coverage of the first round of the Open. I left my book club after 9:30, expecting that, when I returned home Buzz would have taken a bath and maybe be asleep and Paul would most likely be asleep on the couch, which was the norm on book club nights. As I was walking to my car, Paul called. He and Buzz were driving home from TopGolf, a local driving range. Watching the U.S. Open had given Paul the urge to practice. I was very surprised because once Paul got home from work, he rarely ever wanted to leave the house again. But, they must have had a great time because Paul was very animated during the conversation and I could hear Buzz singing in the background. That is a memory that I cherish as one that was a spontaneous but great father/son moment that I believe took place that night for a reason. It was an exciting night for Buzz and he still talks about it nearly everytime we drive by TopGolf.

This has, obviously, been a tough year for all of us but especially for Buzz in so many ways. Which is one reason I posted what I think is a great photo of the two of them. It was taken by Pete Lacker while we were out to dinner a few weeks ago. They were looking at Pete's iPhone and Paul was spelling out something on the letterboard but I love that Buzz is looking directly at Paul. It has been hard for them to communicate this past year and has been heartbreaking at times. But, the bond between them is still there even if the dynamics are a little different.

We watched U.S. Open golf all this weekend and I couldn't stop thinking about last year and looking at Paul in ICU that first day and feeling so bad that he was missing the tournament that weekend. We even requested a television be brought in at the bottom of his bed so that we could have it on. I thought surely he would hear the commentators or the crowd cheering and wake up. Of course, at the time, I had no idea how bad his injuries really were. That would become apparent as the days passed. And they were bad. So bad, that when the doctor finally told me he was releasing Paul from ICU, it was to go to a skilled nursing facility where, the doctor told me, he would stay and, if Paul's condition didn't change, after two years I would have to decide what Paul would want as far as quality of life. He added, almost matter of factly, that making this decision wasn't really like the the Terry Schiavo case; that was all the media hype. It was one of the most horrifying and surreal conversations I've ever had. I was numb. That was a very bad day for me.

Fortunately, I have a good friend who serves as legal counsel for another major hospital in Dallas and she came to visit that day, asked me a lot of questions, and told me not to sign any release papers and insist that our goal be for Paul to go to rehab and don't take no for an answer. And that is what we did and from that day forward, little by little, Paul's condition improved and it continues to improve every day. I guess I am sharing this now because I want people to understand how little doctors can really predict with brain injuries, appreciate how much Paul has accomplished and what a fighter he is and how he will never give up. He continues to work so hard toward walking on his own. He even often requests a schedule of when that will be and has repeatedly told me that his therapists need to work him harder and that he spends too much time at Pate sitting around. They actually work him really hard and there is a reason behind everything he does, even if he doesn't see it.

He has started getting additional physical therapy at the pool at Baylor Rehab. Twice a week, Buzz and I pick him up from Pate in the afternoon and take him to Baylor. The session is only 30 minutes but he gets a good workout walking in the pool and he really likes it. One session last week, he did not have his usual therapist and the woman he did have, who was actually training another therapist at the same time, did not seem to know what to do with Paul or exactly what his capabilities were. They just sort of aimlessly wandered around the pool. After the session, Paul spelled out that that was a waste of his time, he doesn't have time to waste and that those girls were useless. I totally agreed with him but it was SO Paul to get so mad about it. He kept wanting to discuss it via the letter board even after I agreed to call and complain and try to get a make-up session. He just was not going to stand for any nonsense on his watch.

So, as this past weekend has been a milestone for us, I prefer to focus on how far Paul has come and how far that I know he will go, how our families have gone far beyond just being there for us, and how many amazing people that we've met or already knew that have shown extraordinary support, kindness, and generosity. I know I keep repeating the same thing but I feel like I can't say it enough to accurately show how I feel and I can't think of any other way to say it. But, thank you everyone, again for following us during this wild journey. I will continue to write on the blog because, in addition to serving as a great communications tool, it is a great outlet for me to talk about Paul and his progress and what we are going through, but also we get a lot of support from it too in all the comments posted. It is definitely a two-way street.

And, to bring things full circle, Paul and I watched the U.S. Open this weekend and, since much of the play was delayed due to rain, NBC showed a lot of highlights from last year's event so, as it turns out, Paul did get to see much of the tournament. It couldn't have been as thrilling as watching it live but it was still pretty exciting.

Thank you again,
Patty

June 8, 2009 - The DSVC Banquet

2009-06-08T22:28:00.006-05:00

This past weekend was pretty big for Paul. We attended the Dallas Society of Visual Communications annual banquet. Through the years, Paul has been very active with the group - which is the largest, independent visual communications organization in the country - even serving on the Board for several years and as president in 2002. The banquet serves as an award show to recognize exceptional work from Dallas area graphic designers, illustrators, and photographers for the year. As it turned out, two pieces that Paul worked on at MasonBaronet as creative director in 2008 prior to the accident were accepted into the show so that is one reason we decided to attend. The other is that the DSVC has been a huge source of support for us since Paul's accident and many of the members, who he has become friends with over the years, had not seen him since before the accident or early on at the hospital. I was very nervous about attending the show but I know that Paul has come so far this year and continues to improve every day. I also knew that the people that would see him at the show will see him again down the road and, as he continues to recover, will appreciate even more how well he is doing and how hard he is fighting.

Of course, our hope was that Paul would be able to walk into the show but, since he is not quite there yet, we took the wheelchair. We rode over with some friends, Pete and Micki Lacker, and got their early to look at all of the artwork that was displayed before taking a seat at our table with the group from MasonBaronet. From that point on, person after person stopped by the table to see Paul. I don't know why I was even worried! Everyone was so nice, so encouraging, and so genuinely excited to see him. By the time the show started, I think we were both extremely happy that we were there.

Then, Jennifer Brehm, the current president, began the show off by acknowledging that Paul was there, explaining to the 400 or so in attendance what had happened to him, said how happy they were to see him, and how far he has come this year. Suddenly, there was a spotlight on Paul and he was receiving a standing ovation from the crowd! It was one of the most amazing things that I have ever experienced so I can't imagine how Paul felt. If I remember correctly, he looked a little shocked but I know Paul well enough to know that he would never admit it, but he loves being in the spotlight , although I don't know about an actual spotlight. He did spell out for me later that he was overwhelmed. It was just so touching. Since Paul's accident, it has seemed like our life has been so far away from what it was before, I honestly never thought we would again be attending a DSVC banquet, which incidentally was a big night out for us each spring. But, while we were there, it felt right and I realized that our pre-accident life and post-accident life are slowly beginning to come back together. And, that designing will always be a part of who Paul is so no matter what. He still has the passion and the determination and, even after receiving a standing ovation, still expressed regret that he didn't win an award this year so I know he still has the drive and competitiveness.

I just want to thank the DSVC Board, especially Jennifer Brehm, Samantha Reitmayer, Tom Dennis, and Brandi Lefleur for going out of their way to make attending easy for us, for making us feel so welcome, and for providing an exceptional experience. It was a special night for both of us and I know that, for Paul, it was like a pep rally that gave him a boost to keep working. I included this photo of us at the banquet and have more that I will try to post soon. Unfortunately, I don't have one of Paul during the ovation. I had a camera but was overcome by emotion and wasn't thinking clearly enough to pick it up and take a picture.

Thank you, everyone, again for you support.

Patty

May 24, 2009 - Update, Ride of Silence

2009-05-24T13:27:00.004-05:00

This past Wednesday, May 20, we attended the Ride of Silence here in Dallas at White Rock Lake. The Ride of Silence is a worldwide event when cyclists gather and ride in silent procession to honor cyclists who have been killed or injured while riding on public roadways. The ride began here in Dallas in 2003, by a cyclist who wanted to honor a friend who had been hit by a mirror of a passing bus and was killed.

Paul, Buzz, Beth and I met Holly Mason, a friend of Paul's and her daughter by the stone picnic tables off Lake Highlands Drive and waited for the cyclists to pass. We didn't really know what to expect. Paul wanted to stand so Beth and I stood on either side and we all were amazed as hundreds of cyclists, led by a police car with flashing lights, slowly and quietly rode past us. It was actually very moving and kind of emotional. A couple of friends stopped to say a quick "hello" and give Paul a hug. The event made an impact on all of us. I think for Paul, he felt honored but also expressed that he would like to be a part of the ride next year.

The next day, I received e-mails from my uncle, Dick Stevens, who lives in Portland, Maine. He had participated in the event, in honor of Paul, in Brunswick, Maine. He is in the photo above showing a sign on his back. The sign says he is riding for Paul Jerde. My cousin, Hilary (Dick's daughter) also participated in honor of Paul in the ride in Newark, Delaware. I was so touched to hear about their participation. I can't even begin to explain how much strength and energy that both Paul and I get when we know there are people out thinking about us, supporting us and cheering for Paul's recovery. It comes in many shapes and forms but always helps, and in this case, I hope will also raise awareness for bike safety, which is something that I had not thought about prior to Paul's accident.

On another note, Beth, Paul's sister, will be moving to Berkeley, California, on Wednesday. She got a job there and starts June 1. We are all so happy for her because, although she has been looking for a job for a long time in cities all over the country, her dream was to find something in the Bay Area, which she did. We will miss her so much though. I am so grateful that she could come to Dallas last Sept. and help us at a time when I don't know what I would have done. Those first weeks when Paul was in Anna were extremely difficult. I did not want Paul alone there except when he was in therapy and sleeping, and Beth was my savior. She took care of Buzz when I was in Anna and was in Anna when I was with Buzz. And, because she was in Anna and with Paul so much, she became my ally in figuring out what was best for Paul. And, when Paul came home, she was strong and positive and helped us get through the adjustment period. Not to mention that she is fun to be around, makes great salads, and is forever doing laundry for us.

As I am writing this, I am wondering how we'll get along without her. I know that we'll be fine, we'll adjust and it will be good for us as a family, but there will be a huge gap when she leaves. However, she already has promised to return at Christmas and, some day, Paul, Buzz, and I will take a trip to Berkeley.

Thanks again everyone and I hope that you all have a good Memorial Day. Weather permitting, we will be having a cookout at my mom's house and are planning on getting Paul in the pool to practice some walking there.

Patty

Update - May 11, 2009

2009-05-11T20:29:00.002-05:00

As I mentioned before, Paul was getting Botox shots in his right arm. He got the shots about three weeks ago and the purpose again is to fight the spasticity and to relax those muscles that are fighting the muscles he should be using. The Botox has helped. His right arm is less constricted and he can open his hand more than before. In addition, he is wearing splints several hours a day that stretch his elbow and his finger muscles. This is to avoid the muscles shrinking, which they will do if they are constricted for too long. Paul's occupational therapist, Kim, has been working vigorously with Paul by having him pick up, with his right arm, small blocks and objects. She also has given him a project of creating a photo gallery. He has taken photos, which he will upload to a photo gallery and write captions. Kim wants him to use his right arm as much as possible while taking the photos, using the computer, and writing the captions. As soon as the photo gallery is complete, I'll include a link to it on the blog and you'll be able to see Paul's accomplishments but also many of his friends at Pate.

Thank you again everyone for following the blog, especially Mary Ellen up in Manistique, Michigan. We can feel your support 1,200 miles away!

Love,
Patty and Paul

Ride of silence - May 20

2009-05-09T17:39:00.001-05:00

Click to find out more. :-)

A note from Dave Cowling (Paul's brother in law)

2009-04-28T21:50:00.001-05:00

Willie,

Hope all is well, I wanted to pass this along. I use getwellsoonpaul.blogspot.com as a sigline on a couple of blogs I visit. I received a note from someone who happened to go there and was moved to write. Feel free to include it in the blog if you like.

This is what they wrote;

"Wanted to Thank You for your sigline. I sat and read the whole blog. What an inspirational ongoing story of a man's recovery and those whom love him. Paul's wife Patty has become a hero to me this morning as I read the blog."

Just a quick note, but it illustrates the power of Patty and Paul's example and the blog itself.

Thanks,
David

Recent pix at crawfish boil!

2009-04-23T16:20:00.004-05:00

Paul came to the annual new warrior crawfish boil a few weeks ago and I'm happy to report his appetite for crawfish has not suffered much at all. :-) Everyone was happy to see him there, of course, and Buzz, Patty and Beth too!

For the past few months Paul has been attending our weekly warrior men's group meetings and has been doing great. He still mostly spells out his input (which is typically very insightful), and does say an occasional word or two. It's great to have him back!

Blessings,
Willie

Update - Sunday, April 19

2009-04-19T22:29:00.003-05:00

The good news is that, cognitively, Paul seems to be getting better and better each day. He is much less confused and his short-term memory is really improving. He remembers more day-to-day occurances, which makes life so much easier. We can now have a conversation, visit with someone, and watch a movie or television show and he'll remember most of it the next day and several days later. What a relief! I felt like I was constantly reminding him of things that I had just told him, which I didn't really mind. I was more frustrated when we would be with family or friends and something newsworthy would come up that Paul and I had talked about but Paul would just look shocked like he was hearing it for the first time. I had to keep defending myself that I was keeping Paul in the loop and Paul would just shake his head with a "no she isn't" look on his face. I am pretty sure that most people believed me but I sometimes wondered.

His long-term memory though almost seems better than it was before his accident. We played Trivial Pursuit one night a couple of weeks ago and he did great. (We had tried playing at Christmas and some of Paul's answers were pretty off-the-wall.) I couldn't believe how many answers he got right this time or at least how close he was. For instance, in 1973, what musical received more Oscars than The Godfather? It was Cabaret, and Paul got it right. I was surprised. I would not have guessed that he would have known that pre-accident. In fact, I wonder why he even knows that at all... it is curious. And one more movie trivia bit, last night, Beth, Paul, and I were watching The Graduate and discussing the actor playing Mr. Robinson when Paul pointed out that his name was Murray Hamilton and that he also was in Jaws. I think of myself as fairly knowledgeable about Hollywood and, although the actor seemed familiar, I had never heard his name before. Is it me or does anyone else know Murray Hamilton??

Now, if only his body could catch up with his cognitive recovery. He continues to slowly but surely recover his speech. And he works hard every day physically but still cannot walk on his own or even stand balancing for long. We will now see the doctor regularly to have his baclofen dosage increased. It is recommended that the dose only be increased by a certain percentage weekly so we'll be there every week until we start to see more dramatic changes. I know that Paul's determination can carry him far but I think he needs to see some progress soon to keep the momentum going, especially as he becomes more aware of the outside world. He continues to express interest in art, and, although clearly not ready, wants to begin designing again soon. This is all wonderful to hear because his passion is still there but he'll have to relearn the basics of the computer and design programs and it is going to much more challenging this time around. I have to say though, Paul continues to amaze me as I see more of the old Paul coming out, and, with each day, he makes me smile and laugh more and more. He even has become more cynical the past few months, which I guess is a good thing.

And, this week Paul will also getting Botox shots in his right arm. Although temporary, this should help the spasticity there as the baclofen pump primarily targets the baclofen to his trunk and leg. His occupational therapist continues to work hard with his arm and push him to use it whenever he can. More on that, and his baclofen, later.

Thank you, everyone, for sharing our story. I don't know how we could have gotten this far (almost a year!) without the support of everyone. And, I am thankful every day.

Patty

March 24, 2009

2009-03-24T09:24:00.003-05:00

It has now been about six weeks since Paul got the baclofen pump and, although we do see a decrease in the tone, he still is not where we want him to be in his standing, walking and balancing. The amount of baclofen he receives through the pump has been increased twice now and we'll go to the doctor again this week and, most likely, the dosage will be increased again. This is called titrating the dosage, is normal and could take a few months to figure out the optimal dosage for Paul.

His physical therapist also has said that Paul has to now, in a way, relearn how to use the muscles on the right side of his body, not just physically but mentally as well. It is complicated but, for someone to make the smallest movement, it takes a lot of neurons sending messages through pathways to the muscles. The therapist explained that, basically, up until now, Paul was using many, many neurons to send messages through many pathways with the goal that he'd be on target and eventually something would trigger his leg to move or him to be able to pick up his foot. This is not only exhausting for him but also counterproductive as Paul ends up using opposing muscle groups to perform simple tasks. For example, he may be using the correct muscle to lift his leg while an opposing muscle is pushing it back down. As I said, it is all very complicated and I think I only understand it enough to know that Paul still has a lot of work ahead of him. He'll need to retrain his brain to only use the correct neurons he needs for specific movements. The therapists plan on trying biofeedback, a computerized technique which will measure particular muscles being used during certain movements, to help determine where he is "misfiring." He'll then be given certain exercises or thought processes to utilize to try to help him use only the correct muscle groups. Again, this will be a challenge for Paul as he still has a severe memory deficit. But, as I have said in the past, this continues to slowly improve.

His speaking continues to slowly improve as well. His speech therapist, Megan, is great with Paul. She makes him speak as often as possible, works vigorously on his writing, and she has a great sense of humor too. She and Paul joke around and I know that helps him stay motivated although he is in the last place that he would have ever choose to be.

The really good news though is that cognitively Paul is getting better and better all the time. I feel like his mind is improving and his body just can't catch up. In fact, Saturday night, some of Paul's friends (Ed Schafer, John Hampton, John May, Tom Dennis, and my brother-in-law, Dave Proudman) brought dinner over and the group played several rounds of blackjack afterward. Ed even brought his professional blackjack kit, which is something he also brought on annual golf trips Paul used to go on with the same group. Paul had a great time Saturday night and everyone commented on how well he was able to play and how he held his own against the other players. The idea of a night of blackjack was Ed's, who reminded us that Paul was so into blackjack during the golf trips that he once showed up at Ed's house for a private lesson. As silly as that is to me (I don't ever remember any big "winnings" after the golf getaways) it is another reminder to me that Paul will go the extra step to succeed.

Paul has been sketching more and more, watches golf constantly, and also has been reading quite a bit. He also maintains his sense of humor. The other day, he, Beth, and Buzz were talking after watching the movie Surf's Up. Beth commented that she wondered where the term "Holy Mackeral" came from and why no one ever said "Holy Sardines." Then Buzz started saying "Holy Sardines" and Paul spelled out, "C-o-d D-a-m-m-i-t." Of course, we told Buzz that he couldn't repeat that phrase but we all got a good laugh out of it.

Although my updates haven't been regular (I think I was avoiding updating it until the "miracle" baclofen pump started working but I found that, with most things following a traumatic brain injury, progress is very slow), I hope that you will continue to check the blog often and keep Paul in your thoughts and prayers.

Patty

Update - Feb. 24

2009-02-24T15:59:00.002-06:00

The past couple of weeks have flown by and I apologize for not updating the blog sooner regarding Paul's baclofen pump surgery. He is doing well although he still cannot do any rigorous physical rehab until tomorrow, which will be two weeks since his surgery and the incision should be completely healed. As we expected, he does seem a little weaker on his right side, however his right leg seems less stiff and his right arm is looser. That is all good. We had one follow-up appointment with the doctor, who increased the amount of baclofen Paul recieves daily and he will continue to tweak that amount to determine what Paul needs to get the best results.

Paul also is less tired as we've weaned him off the oral baclofen. Not only is he less tired but his speech seems to improving a little bit. When I say that, I don't mean he is talking and holding conversations but he seems to be able to say more words on his own without being prompted. This is still a very long and slow process and he continues to primarily use the letterboard and Dynavox but it is still progress, which is something we are thankful for every day.

His therapists report that he is very upbeat during therapy and has a great attitude. The other day, a group of patients was playing darts and Paul went to join them and said, "Bring it on!" We've practiced this phrase a lot but it is wonderful to know that he said it on his own.

Paul's brother, Jim, and his wife, Lori, were in town this weekend and we all had a great time. Jim, Paul, and Buzz played Frisbee for quite some time on Sunday and Paul did very well, despite having to catch and throw with his left hand AND while sitting in the wheelchair.

We expect that Paul's rehab will continue for many more months. That is okay though, because as long as there is improvement, I don't think anyone wants to stop now. Thank you again everyone for your continued support.

Patty

February 11, 2009

2009-02-11T08:05:00.003-06:00

I am happy to post that Paul's surgery went well yesterday. The procedure was over about 7:00 p.m. last night and the doctor said it went very smoothly and that he is very optimistic about the possibilities. Prior to the surgery, he videotaped Paul sitting, standing, walking with assistance, and stretching his arm so that he could measure Paul's improvement over time. Prior to the surgery, Paul spelled out, "I'll be happy once they implant this S-O-B" and he did seem very happy afterward but in some pain. Beth stayed with Paul at the hospital last night and it still is to be determined whether he'll stay over tonight as well. I'll keep you posted.

Thank you, everyone, for keeping us in your thoughts yesterday. Paul read throught the blog messages at the hospital as we waited to be called in for the surgery and I know he appreciated all the support and encouragement. I did too!

Thanks again,
Patty

February 5

2009-02-05T09:51:00.002-06:00

The baclofen pump surgery is scheduled for next Tuesday, Feb. 10. Paul will stay in the hospital (UT Southwestern/Zale Lipshy) at least one night, maybe two but at this point we don't know. Once the pump is installed, I believe that the doctor will want to watch him as the first doses of baclofen are distributed via the pump and then fine-tune the amount and what time he receives the baclofen. We are excited but, as I said, a little scared. Paul has expressed sadness that he will have to have this device in his body but we've tried to assure him that, if it allows him to get stronger, gives him more control over his body, and, hopefully, walk with less assistance, than it will be worth it.

Paul's short-term memory continues to slowly improve. We've learned that we have different types of memory and each is located in different areas of the brain. A doctor at Pate explained it, in very simple terms, by using this as an example: You have a doctor's appointment in the morning. One part of your brain stores the information that you went to the doctor, another stores the information about what the doctor looked like, and yet another will store the information about what the doctor said. Basically, it comes down to taste, smell, vision, hearing, and physical feeling - all are stored in different areas of the brain. If one of these areas of the brain is not working properly for Paul then that leads to confusion when he tries to put the pieces together. He is currently being tested to see if it can be determined which areas are affected so that we can help him with those specific memories.

That said, Paul's longer-term memory continues to amaze me. We went to see one of the doctors for the first time at Pate here in Dallas. The moment we walked in, both Paul and I, and the doctor, knew that we all knew each other from somewhere but couldn't figure out where. We went through the usual scenarios of work, school, neighborhood, etc. but still couldn't figure it out. Then, near the end of the visit, Paul spelled out O-L-D D-A-Y... and before he could finish we realized it was from Buzz's daycare. Her son was in Buzz's class for a time but that was almost three years ago. So, the dynamics of the brain and all that Paul can and cannot do continues to fascinate and frustrate at the same time.

Please think of Paul, and say a prayer for him, next Tuesday around 3:30 pm as he goes in for his surgery. It is minor surgery but could bring about some major changes.

Thank you,
Patty

Jan. 28 - Pumping Up Paul's Recovery

2009-01-28T11:19:00.006-06:00

Although Paul has been working extremely hard on his walking, he continues to have severe spasticity, which is a form of muscle overactivity caused by his brain injury. Basically, it is an involuntary increase in muscle tightness (tone) through much of his body. The spasticity occurs because of damage to the neurons, or nerve cells, that send signals from the brain to the muscles that cause movement.

Paul is fighting that spasticity all the time and this has affected his ability to progress in his walking but also has affected his trunk strength and the use of his right hand and arm. Because of this, it has been determined that Paul would benefit from a baclofen pump, a surgically implanted programmable pump that delivers medication directly to the intrathecal space where fluid flows around the spinal cord. Paul was tested for this treatment last week during a 24-hour stay at the hospital where the doctor gave him a shot of the baclofen directly in that area. Within just a few hours, a physical therapist could see dramatic changes in Paul's spasticity so we are very excited about the possibilities. Of course, changes won't happen overnight. In fact, Paul may take a few steps back in areas of strength because muscles overpowered by the spasticity haven't been used since his accident in June.

The pump, which looks like and is about the size of a hockey puck, stays permenantly in his hip area and will need to be refilled about every three months with baclofen. This is done by inserting a syringe through the skin and directly into the pump. All of this is a little scary but knowing that Paul could continue to progress makes it seem worth it.

Paul's new physical therapist already has told us that she is impressed by how strong Paul is despite the spasticity he is fighting. She also has seen his competitive spirit in action. She shared a story of how they were practicing his walking and passed another patient who was practicing walking but had the benefit of another type of treatment (not the baclofen pump) that the therapist also plans on using with Paul. She was talking to Paul about it and telling how he could soon walk that well too. Paul then spelled out on his letter board, "I'm going to kick his ass."

We expect the baclofen pump surgery to be in the next couple of weeks but we are pushing it for sooner than later as the first year of Paul's recovery is the most important. Please continue to pray for Paul. He is determined to keep working and stay optimistic but does experience many moments of confusion, sadness and anger.

Thank you all again and I will keep you posted on the baclofen pump surgery.

Patty

Update - Jan. 19

2009-01-19T09:40:00.003-06:00

Paul began his second week at the Pate facility in Dallas (near LBJ and Josey Lane) and things seem to be going well. Although he made great strides while in Anna, I think it is really good for him to be in a new environment with a different group of therapists that will mix things up a bit. A van comes to get him each morning around 8:15 and he is home by 4:00 and, although he still is tired at the end of the day, he doesn't seem as exhausted as after the nearly hour-long commute that he had.

The change to the new facility has reminded me in many different ways of how far Paul has come since he arrived in Anna back in September. At that time, he was extremely confused and scared and I don't think he understood where he was or knew, from day to day, whether or not I would be visiting. Everytime I arrived to see him, he got very emotional and wouldn't let go of me. Last week, Beth and I forgot to include Paul's letterboard with his things on his second day at the new facility so we drove over to drop it off. Paul glanced up, acknowledged us, and then completely turned his attention back to his occupational therapist, who was exercising his right arm. I felt a little bit slighted (after all I am his wife!) but, of course, recognized it as a great moment in his recovery. I also know that when Paul is focused on getting something done, he doesn't tolerate any outside distractions.

I also remember the first day at Pate in Anna, his group was playing Bingo and the therapists put a card in front of Paul. I thought there was no way that he could play Bingo, he seemed to barely know what was going on! He was able to recognize the numbers for awhile until once his card became cluttered with markers, then he started missing numbers. He became better and better at Bingo and other games such as Uno and dominos. Well, this weekend, a friend of Paul's, James Bland, stopped by and brought a Chess board and he and Paul played a few games. This is something they used to do together occasionally on their lunch hours. On Sunday, another friend, Pete Lacker, came by and they also played a few games of Chess. Again, I realized how far Paul has come in the past five months.

Paul, Beth, and I also went to see "The Wrestler" (Paul's choice although I have to say I did like it) this weekend. Paul was focused the entire movie and afterward we discussed it, via the letterboard. It was nice because going to the movies is one of our favorite things to do. We saw the movie at the Angelika in Dallas and realized that it was very easy to access by wheelchair and we will be going to see more movies there as Paul continues to work on his walking. (We went to see a movie with Buzz over the Christmas holidays at another theater and it was a production/fiasco getting Paul in and out of the theater. Again, this all opens my eyes to the many challenges faced by others in similar situations and how, although many people will go out of their way to assist you, others will not acknowledge you. I realize how important it is to help Paul maintain his dignity while he is going through this.)

As I said, Paul continues to work on his walking. We are looking into a medical procedure that might help and will know more about it at the end of the week. Paul also continues to work on his talking, which is very slow in coming but we do see progress so we continue to push him.

Thank you again, everyone, for your continued support.
Patty

Paul's first haircut at home - the movie

2009-01-12T21:54:00.005-06:00

Paul's haircut from Willie Baronet on Vimeo.

Paul would like to thank the rest of the cast, the producers at Fox Searchlight, without whom this project would never have gotten off the ground, the entire crew (you know who you are) and all the members of the academy. Love and blessings to all of you.

Dec. 31 - Paul's First Message (Short but Sweet)

2008-12-31T19:03:00.004-06:00

it feels good to finally say hello in person. happy new year. thanks for the great thoughts and goodwill.
adios pablo.

Update (Finally!) - Dec. 28, 2008

2008-12-28T18:12:00.008-06:00

I can't believe it has been more than two weeks since Paul arrived home. It has gone by fast but also feels like living at Pate and the hospitals are long in the past. We had a great homecoming. Paul, Beth, and I picked up Buzz from school on the way in from Anna so Buzz was there with us when we arrived home. Although Paul needed assistance from both Beth and I, he did walk in the front door, which is one of the goals we both had for his arrival. He seemed very happy to be home and, as Beth and I prepared dinner, Paul and Buzz sat together on the couch and watched "SpongeBob SquarePants," which is one of their favorite pastimes. That night, we had a great dinner and made a toast to Paul being home. Buzz was so happy. He kept running into his room to get toys or memorabilia he and Paul had made to see if Paul remembered them. It was very sweet.

As happy as we were that Paul was home, those first few days were pretty difficult and emotional. Logistically, it was hard to get the hang of maneuvering him around the house in the wheelchair, transferring him, and getting him in and out of the house. We also are all getting used to being out and about with Paul in the wheelchair and the amount of planning ahead and time involved. It is a learning experience for all of us and has certainly opened my eyes to many things. I think it is hard for Paul to be home and out in familiar places because it has magnified his limited abilities but it also has made him even more determined to continue to practice his walking and his talking.

That first week, the mornings were chaotic. Since Paul is continuing his therapy at Pate in Anna through part of January, someone from the facility arrived each morning at 8:00 to pick him up, which is about the exact same time that Buzz goes to school. Thank goodness, again, that Beth is here to help. Right now, Paul needs assistance showering and dressing and takes a variety of medications in the morning so it took that whole first week to get a routine down that ensured Paul was ready when the van came and that Buzz made it to school on time.

We've also had many visitors, which has been a great thing for Paul, especially in helping him put the pieces of the puzzle (his life) back together. The home environment has really made a difference. For example, about a month ago at Pate, we tried to log on to Paul's e-mail and he could not remember the password. But at home, on our computer, he knew it immediately. We also took a field trip to MasonBaronet, the agency where Paul worked before the accident. Holly Mason, who owns the company and has been wonderful to us throughout this ordeal, met us there on a Saturday. Paul seemed enlightened by the visit and I really think it opened his eyes to his career and what he did. Again, putting the puzzle pieces together. Prior to that, he knew where he worked and knew his co-workers but I'm not sure that he remembered exactly what he did or some of his work. He still often gets confused and, although his short-term memory is improving, must constantly be reminded about things or told things several times before he can remember them. It is hard to tell for sure but I am excited because he has now showing more of an interest in his work and has begun drawing a little bit more too. His art and creativity is so much a part of who he is and I really hope that he finds that again.

On the Monday before Christmas, we were just finishing up dinner when there was a knock on the door. Samantha Reitmayer, who was instrumental in organizing meals being brought to the hospital daily those first few weeks after the accident, and Willie Baronet, showed up at our doorstep with a bundle (I don't even know if bundle is the correct word!) of gifts. They had four enormous stockings full of gifts and additional presents not just for Paul but for all of us. I thought Buzz's head was going to explode. We had a wonderful time opening the gifts and were all overwhelmed, once again, by the generosity and kind hearts of so many that donated money and gifts or have stopped by with packages and gift bags. That evening, Paul seemed touched as he opened his gifts and heard the names of those who had participated and spelled out on his letter board that he would need to thank each individually. (pictures below)

I am so touched to know that so many of Paul's colleagues and friends had participated. I've been so focused on Paul and his recovery that I feel like we've been living in a time warp and the rest of the world is moving on but knowing that so many still think of Paul and support him and us was touching. Especially everyone in the design community, which has been such a big part of his life.

Christmas was great too. We had a fun morning at home opening gifts and then went on to my mom's house where, because of various family obligations, traveling, and even the flu bug, we had a small turnout compared to most years. That was probably a good thing though because we stayed for more than four hours and I don't think Paul would have lasted that long had everyone shown up.

Thank you all again for all that you've done and for following Paul's story and his recovery. This has been an incredible experience for me - I've learned so much, gotten to know so many amazing people, and been deeply affected by all of those who have cared and offered assistance. I can't even begin to think about how things would have played out for me, Buzz, and for Paul had we not had the incredible amount of help we got from my family, our friends, and the design community. We now are looking forward to 2009 - a new year with many new opportunities.

Recent visits (oh, and today Paul comes home!!!)

2008-12-12T07:12:00.002-06:00

Paul and Tanya

Paul B., Willie, Mike, Paul J., Dave, Brent, Gary (seated). Some of the Saturday morning basketball gang.

Hey, who's the wise guy?!

Patty and Paul

Willie, Paul and Jeff

Paul and Jeff can't stop laughing...

Oh, and did I mention, PAUL COMES HOME TODAY! :-)

Priceless

2008-12-09T21:45:00.002-06:00

Every once in a while you come across something so precious, so priceless, so perfect that it must be shared. This is one of those times. :-)

Lovingly "borrowed" from a stash of pics that Paul's mom brought down on her last visit.

Blessings to all of you for continuing to send love to Paul.

Willie

Four More Days - Dec. 8 Update

2008-12-08T08:37:00.002-06:00

The countdown continues as there are now only four more days until Paul comes home. Thanksgiving went well and, although I know it will be a huge adjustment from life at Pate, I think Paul is ready to be home and will be stimulated by being back in his real life.

Paul still is not verbal so we continue to communicate via the letter board. We don't have the Dynavox machine yet as there is paperwork involved because the machine, which is fairly expensive, is being provided by the state. (Thank you, everyone in Texas, for paying the universal service charge on your phone bill. Now you know where some of the money goes.) Right now, we have a Dynavox trial software program on my computer that we've been practicing with but since Paul is still adapting to using the keyboard and typing with only his left hand, it is slow and he prefers using the letter board. The letter board works fine, but is time consuming since you have to concentrate as he spells out each word. If you miss a letter, it gets very confusing. Of course, oftentimes, I can guess the word before he finishes spelling but sometimes I am wrong in my guess. For example, on Saturday a friend who we had not seen for some time even before Paul's accident was visiting. It was an emotional visit and I was teary eyed when Paul began spelling out, "C-R-Y..." Before he could finish, I said "Crying, yes, I was crying but don't worry about me, I am fine." Paul shook his head and continued spelling, "C-R-Y-S-T-A-L L-I-G-H-T." It turned out that he was not really concerned about me but just thirsty. The old Paul continues to shine through!

I expect that the actual Dynavox machine, which is touch-screen, will be easier for Paul to use. Again, he continues to work on his speech and I remain very hopeful that it will come easier in time.

Paul's other main focus still is his walking. He wants to practice all the time and often just tries to get up out of the wheelchair. I think when he gets home, his determination will multiply and we'll have to keep an eye on him until he has more control and balance.

The renovations on the house continue and, right now, it is a mess but I think most of it will be done by Friday and we'll be able to clean up the coat of dust that covers just about everything. We plan Paul's arrival home to be low key because we think he will be overwhelmed enough simply by being here. His coming home is just one more step forward on his journey to recovery. I've been doing some research on traumatic brain injuries and have read that, although much of the recovery takes place during the first year to two years, the brain can continue to heal and change throughout a lifetime. Right now, I believe he is far from done with his recovery and nowhere near where he'll be in a year.

That said, I'll continue to update the blog even after Paul's homecoming and perhaps, one day soon, Paul will be able to take part in updating the blog too.

Patty

Update, Nov. 21 - Paul Gets Closer to Home

2008-11-21T08:48:00.003-06:00

Paul took his first trip back to Dallas last Saturday night on an outing to my sister Katie's house in North Dallas. It went great! He seemed to enjoy the drive and appreciate being back in familiar territory. Transporting him was easy as there is only one step to get into the house. From the car, he got in the wheelchair but when we got to the step, we helped him walk up the step, into the house, and to a chair in the living room.

Not everyone in my family was there but we still had 7 adults and 5 kids. We figure this is good practice for Thanksgiving, when the head count will double. It was a nice visit. He had a long conversation (via the letter board) with my sister about William Faulkner's "The Sound and the Fury." I'm not really sure how it came about, sometimes the topics he wants to cover come out of nowhere, but he definitely remembered reading the book and all the details and meanings behind the plot. Dinner went well too but shortly after we ate, the kids started to get a little rowdy and the noise level rose quite a bit. Paul let us know that he was ready to go.

As I've said before, he still gets confused and often spells out that he feels out of it, scrambled, or scared. The neuropsychologist at Pate has said that this is a good thing because Paul is moving toward comprehending the bigger picture, that something has happened and his life is out of whack. Apparently, many traumatic brain injury patients never even reach that point.

Little by little, Paul also seems to be getting his short-term memory back as well. For a while there, Paul would ask me every 15 minutes how long I would be staying at Pate that day. It actually got to be a little bit comical. He now seems to remember for the most part but he still acts a little surprised when I do say I am leaving. He also can forget what happened earlier in the day or that he had recent visitors. The doctor feels this should get better but may always be somewhat of a problem.

We are excited about Thanksgiving (Paul's mother will be here for a week) but we are even more excited (and nervous too) that Paul has been given a discharge date and will come home Dec. 12. However, his rehab will continue as he'll have out-patient therapy through February, if not longer. We are preparing the house for his arrival by renovating the bathroom to make the shower larger and by adding grab bars. We also are installing French doors in the front of the house that will allow Paul easier access into the house. We continue to be very hopeful and optimistic about Paul's walking but the reality is that, by December, he still will be using the wheelchair.

Both Paul and Buzz have countdown calendars to Paul's homecoming and we mark off the days as they pass. I cannot believe that five months ago I didn't know if Paul would ever be returning home and now he will be here for Christmas. What a wonderful gift for all of us.

Thank you again for following our story.

Patty

Lunch and a haircut

2008-11-17T09:44:00.003-06:00

Last Sunday Patty, Pete, Jim (Paul's brother), Jason and I went with Paul for some good ole Mexican grub.

Here's a pic from after lunch.

Then it was time for haircut number 4 since Paul's accident. Here's Paul getting prepped.

Here we go!

Paul approves.

Jim soaks in the sun and listens to the buzz of the clippers.

And we're done! Paul forgets to tip the barber. :-)

It was a great visit, and Paul showed some progress in spelling out some longer sentences using his alphabet sheet. He also was eager to do some walking, so with some support on each side he walked several times across the patio. He is getting stronger, but it's still quite a task for him to lift his right leg. Paul is such an inspiration, and I am so grateful to be his friend.

Willie

Update - Nov. 13, 2008

2008-11-13T09:09:00.005-06:00

Paul continues to struggle with the aphasia and his ability to talk. Until now, we've been using a message board, which is just a laminated sheet of paper with the alphabet on it. He spells out words and we write them down on a dry erase board. He has gotten much better at communicating this way, however it can time consuming and exhausting for both Paul and the person he is communicating with. So, this week, we met with reps from a company called Dynavox and have ordered a touchscreen device that will assist Paul in communicating. It includes a keyboard, word prediction, and voice activator that articulates the phrases for him. Of course, we do not want this to take the place of him talking and we, and his speech therapist, will continue to push him to talk.

Again, Paul is progressing, grasping and expressing more complicated thoughts yet he still gets confused and needs to be reminded of what has happened and putting the pieces back together. We continually try to fill in the gaps from pre-accident until now. He seems to have stronger memories of significant people and events from the past. For example, wanting to call an old friend from high school that he has not spoken with in 10-15 years or even thinking that he recently saw that person at Pate.

That said, he does continue to progress and things change weekly. This is a good thing. Today, I am going out to Pate earlier than usual to watch Paul's physical therapy treatment in the pool. He walks on a treadmill underwater and, as of last Thursday, insists upon walking up the steps to get out of the pool as opposed to using the lift chair. His determination continues to show up in every task.

I'm off to Pate. Thank you for your support and interest in Paul's recovery.

Patty

Update, Nov. 4, 2008

2008-10-28T09:58:00.011-05:00

Paul's hard work is paying off and he is now practicing walking with a platform walker, which is a regular walker with an attachment that serves as a forearm rest for his right arm. Until now, the therapists had him using an EVA support walker, a larger walker with wheels that supported Paul's weight and helped more with his balance. The platform walker is forcing Paul to really balance. While he is progressing during his theraphy sessions, the reality is that outside of his therapy sessions and practicing walking, he requires a wheelchair.

I also am including this photo of Buzz and Paul during a visit to Pate last Saturday. I am so proud of Buzz. He is always excited to visit Paul, gives him lots of hugs while we are there, and cheers Paul on when he is practicing his walking and talking.

I also want to thank the staff and parents at St. Patrick's (Buzz's school) and everyone from Buzz's soccer team. The outpouring of generosity and kindness from the school and the community, in general, has been overwhelming and made such a difference in helping us get through this. I feel like almost everywhere we go, people go out of their way to look out for Buzz. Buzz seems oblivious to all of this but I know it has helped all of us cope.

Thank you again,
Patty

October 22 - Paul Moves Up

2008-10-21T20:00:00.005-05:00

Paul has been promoted to Hilltop, another building within Pate Rehab. Most of the residents at Hilltop are self-sufficient and don't need as much care as Paul, who still requires supervision and maximal assistance. However, it definitely is a step forward for Paul and very positive mentally and emotionally. The house is bigger and cheerier and, instead of just a bedroom, Paul now has an efficiency-like apartment with a sitting area, washer and dryer, mini-refrigerator, and his own bathroom.

He seems very happy about the move and already has started entertaining, with visitors last night. He even did a little disco dancing from his chair to some '70's soul music.

He continues to vigorously work on his walking. On Sunday, we took him to the park and he insisted on walking so, with assistance from my brother on one side and my brother-in-law on his other side, he walked probably, all together, half a block. Balance is still a major issue but he continues to get stronger and improve his cadence. I was so proud of him though because he kept wanting to walk farther, even though it was obviously very difficult and exhausting.

We invite you to come visit on the weekends. Now that Paul has two-hour passes, there are times when we might be off campus so if you plan on visiting, please let me know via e-mail (patty.jerde@yahoo.com).

Thank you, everyone, for accompanying on this journey.

Patty

Pics from the Mexican restaurant outing :-)

2008-10-16T14:59:00.003-05:00

Pete and Paul and a chip.

Yum. Where are my enchiladas?

Peter, Paul and Mary. Oops, I mean Patty, Paul and Mary.

Awwwwwwwwww...

Update - Oct. 14

2008-10-14T12:58:00.003-05:00

Paul took his first official outing from Pate on Sunday and it went great. My sister, Mary, Willie Baronet, Pete Lacker, and I all accompanied Paul to a Mexican food restaurant in "downtown" Anna. We were able to go as Paul now has daily two-hour passes that allow him to leave the Pate compound. I was a little nervous because I wasn't sure how Paul would react (prior to this we had driven around and gone to Sonic but never actually taken him out of the car). He is getting stronger every day so transferring him from the wheelchair to the car was very easy. I think he was a little nervous but we got to the restaurant early so we were the only customers, the service was quick, and the food was good. He was in a great mood and laughing as we talked. I think he was sad to have to go back to Pate but, eventually, the passes will be for longer and, when he is ready, we can bring him home for visits. I hesitate to do that now because I think going back to rehab would be really hard for him. In time, I expect that he'll have a better understanding of why it is important that he stays there and continues to work hard.

Although his ability to speak is slow in coming, Paul has gotten better about spelling out words on a laminated letter board and by writing on a dry erase board, both of which we keep with us at all times. He doesn't always spell correctly but so far has communicated with the board both by spelling out one word or whole sentences. On Thursday, Beth was visiting with him, they were sitting outside, and he spelled out "jacket" to let her know that he was cold. On Friday, he spelled out, "How long will you be..." and before he could finish, I guessed the last word was "staying." I was so happy (for both of us) that he was able to communicate because I can't imagine how trapped and scared he must feel. In fact, he has spelled out "fear" when we've asked how he is feeling. He still is sad a lot though he also, more and more, gets that determined look on his face, makes a fist, and seems ready to take on the world. In addition to walking in his daily physical therapy sessions, the staff at the house helps him practice walking every night. This seems to ease his agitation, calm him down, and boost his confidence. Each time, after he walks, he insists on giving everyone involved a big hug and seems very proud.

We also constantly give Paul pep talks to keep him focused on what he can do and on what he will do, instead of what he can't do. Please keep praying for him and thank you all for your support.

Love,
Patty

Friday, Oct. 3

2008-10-03T10:15:00.002-05:00

Life at Pate continues for Paul. He is really working hard on building up his leg endurance with several therapy sessions daily that include pedaling exercises, a standing frame (which assists Paul in standing for long periods of time), exercises in the pool, and walking with assistance and a walker. On his own, he also builds strength by using his legs to mobilize his wheelchair.

He also recieves occupational therapy daily, where the focus is on his right arm and hand. Unfortunately, the movement of his right arm and hand are affected by ossification of the muscle, which means some of the muscle tissue has ossified (turned to bone cartilage). His therapist continually works on the range of motion and has made progress but, right now, Paul is not able to use his right hand. As he is right-handed, this can be a problem but he seems to be adjusting fairly well to using his left hand.

Paul's biggest hurdle right now is the apraxia and his inability to talk. He can often repeat words but has a hard time communicating his own thoughts and messages. This is very frustrating for him as he seems to know exactly what he wants to say but, as soon as he begins talking, the words that he wants to come out, don't come out. At least that is what we believe. The obvious solution would be to write down his messages, however the aphasia has affected his ability to write as well. His speech includes repeating words and sounds, practicing writing, and even exercsises and programs on the computer designed specifically for patients with brain injuries. Of course, he has to maneuver the mouse with his left hand (akward) and left click, since it is a PC as opposed to a MAC. I'm pretty sure that he has an aversion to working on a PC because he almost always seems disgruntled during his computer sessions, although he succeeds well on the exercises.

All around, he is making progress but it is a slow process and we expect him to be at Pate for awhile. We feel that Paul is beginning to realize the bigger picture in that something drastic has happened to him. He gets very sad at times, which is to be expected, and angry. However, he also seems to realize that his hard work helps his recovery and will accelerate his being able to come home. As we've all known about Paul, determination is one of his greatest traits and it is beginning to show through once again.

We encourage people to come on the weekends as Paul has a lot of free time and seems to benefit from visiting with friends. Please send me an e-mail if you plan to come out.

On a related note, Paul's sister, Beth, has moved to Dallas from Cedar Rapids, Iowa, to help me take care of Paul and of Buzz. (My mother and sisters helped with Buzz all summer but once school started and Buzz and I moved home, things became a little more complicated.) It has been wonderful having Beth here. She is great with Buzz and makes the drive to Anna almost as often as I do, which has allowed me to spend more time with Buzz as well. Now she is looking for work. She has an extensive background that includes program management, teaching, training people, grants administration and PR. So, if you hear or know of any openings (full, part-time, or even seasonal) she is immediately available and open to almost anything, please e-mail her at bjerde55@hotmail.com.

Thank you again for all of your support,
Patty

Paul's haircut #3

2008-10-02T09:02:00.002-05:00

Patty, Paul, Jim (Paul's brother) and Beth (Paul's sister, shortly after Paul got his 3rd haircut since the accident. And yes, I'm the one using the clippers. :-)

Keep sending cards and letters!

Love and blessings,
Willie

Jerde Cup Pix!!

2008-09-28T10:45:00.001-05:00

Click here to see pix from the tournament!

And thanks to all of you who made it such a huge success!

Wednesday, Sept. 24 - The Day After the Jerde Cup

2008-09-24T10:51:00.004-05:00

The Jerde Cup was yesterday and it was an amazing event. I was there around noon to greet some of the golfers and was completely overwhelmed by how many people participated, how organized the event was and how much Paul's presence was felt throughout. In every group, I saw a part of our lives, whether it was high school friends of mine, college friends of Paul's, friends from Dick's Last Resort (where we met more than 20 years ago), colleagues from my many years at ClubCorp, from RSW Creative (Paul's first job out of college), MasonBaronet (his most recent job) friends of family, and SO MUCH representation from those in the design community. What an extraordinary group of people. As I was chatting with one volunteer about how overwhelmed I was with the organization and generosity of Paul's creative designer friends, he added, "And not only that, designers make sure everything looks great too!" And they did - there were Jerde Cup coffee cups and T-shirts and some incredible drawings and paintings of Paul out on display.

I did not stay for the dinner afterward because I was at Pate with Paul but I told him about the event and I believe he understood, smiled but also got very emotional when he heard about everyone who was there. From what I heard, the dinner afterward was a great success and everyone had a wonderful time. Buzz was there with his cousins and came home with several raffle prizes and a passion for the game of golf. This morning, he was practicing his putting on the front lawn and ended up being late for school. I guess the golf bug runs in the family.

When Paul's accident happened on June 14, we were catapulted to a new life. I feel like our families and our friends were there to catch us, gently place us on the ground, and have helped clear our pathway as much as possible. We are so blessed to have such a large group of friends and family that care so much to take the time and effort to support us. So many people have stepped in and contributed in so many ways - it is a tribute to the human spirit and how kind and caring people can be.

Thank you to all of the organizers of the Jerde Cup, especially John May, John Hampton, Dave Cowling, and Anne Clarrissimeaux and all of the others who helped set it up, the volunteers, those who donated so generously, and to all the players.

I hope those who attended will take the time to post messages on the board about their experience so that I can share the good times had with Paul. And, I know many photos were taken and we'll post them on the blog soon.

Thank you again.

Love,

Patty

Paul gets a visit from his men's group!

2008-09-22T09:02:00.004-05:00

Last Thursday night, Paul was surprised by a visit from his weekly men's group (the New Warriors). We all sat in a circle, got to visit, and Paul seemed to understand what everyone was saying, and we could tell he wanted to be able to speak up more himself. We've missed Paul a lot these last 3 months, and it was great to all be together again. Hopefully we'll do it again before long. Paul had a huge smile, and couldn't get enough of the hugging. Thanks to Francisco, Gary, John, Bruce, Dan, Sandy, Raymond, Ed, Donny and George for being there, and also to Jeff, Shane, Harry and Marc, who were there in spirit. Your love for Paul means a lot!

Blessings,
Willie

p.s. (I'm not in the picture cause I took it!) :-)

p.s.s. JERDE CUP TOMORROW!

Update Saturday, Sept 20

2008-09-16T20:07:00.001-05:00

We've found that, as Paul becomes more aware of what has happened to him and his limitations right now, he can get very frustrated and agitated (and rightly so). The neuropsychologist has told us that this is normal and part of the process. Therefore, I am asking that anyone visiting to keep visits short (15-20 minutes). I know that it is a long drive out to Anna and I am so thankful that everyone has been so concerned and cares enough to visit. These visits seem to make Paul happy but when he can't actively participate in discussions or activities, he often becomes frustrated. Again, please contact me via e-mail (patty.jerde@yahoo.com) if you plan to visit and keep the cards and letters coming as well. I am so thankful that we have all of your support and I encourage everyone to continue praying for Paul and giving him the strength that he will need to get through this.

Love,
Patty

Wednesday, Sept. 17

2008-09-16T11:34:00.006-05:00

It is less than a week before the Jerde Cup and I'd like to thank everyone who has signed up to participate, whether as a player, sponsor, or volunteer. I would especially like to thank, in advance, those who have planned the tournament. I know this has been no easy task! I am so touched that so many people are willing to take the time, whether it has been the months of planning or day off work to play (or as in my uncle and aunt's case, flying to Dallas from Baltimore), to support Paul and our family. I don't believe that Paul understands completely right now but I know he will one day and he will be flattered, moved, and most likely envious that he missed out playing a round on Tour 18 with so many friends and family. Thank you again and I look forward to seeing everyone next Tuesday.

Patty

A pic of Paul, blue suede shoes and a story from Phil

2008-09-16T09:52:00.003-05:00

This is the first picture of Paul we've posted since his accident. It seems appropriate that it would be a celebration of his wedding anniversary, with the following story from Phil Hollenbeck:

When Paul asked me if I'd shoot his wedding, I just wasn't too sure that would be a good idea. I'm not a wedding kinda shooter guy and Paul was in the "business", a young creative on his way up. Did I really want to shoot a designer's wedding? And Paul's so picky. What to do, what to do? Well, when he told me the wedding was going to be at Rehoboth Beach, Delaware, that sealed the deal. Rehoboth Beach was where I spent some fine summer vacation time with a favorite uncle. We were from Baltimore, a short drive to the beach. Shooting Paul & Patty's wedding would trigger a lot of memories for me. I could visit old haunts, drink Gunther beer while feasting on Chesapeake Bay blue crabs and take a day trip to Tangier Island. It would also afford me an opportunity to visit my mother's grave site in Baltimore. She was killed when I was 11, oddly enough, on September 6th, 1954. So it seemed to me that the stars were in alignment for me to shoot this wedding. So I did.
When I got the news of Paul's accident I was both stunned and horrified. Like many others, I just couldn't believe this news. On my first visits to see Paul in ICU at Baylor, I saw many of Patty & Paul's family. These were people I hadn't seen since the wedding eleven years ago. A few of them said, "I remember you. You were wearing those blue shoes." That's true. Blue suede shoes. Think Elvis. Paul was going into week three at Baylor and I was at my Arkansas getaway in Eureka Springs. Rummaging thru boxes from the recent move I came across, yes!, the blue shoes. A major brain fart went off in my head and I thought, "Wouldn't it be great to make Patty & Paul a wedding anniversary gift using these shoes?" So I did. The frame was found by the side of the road. I spray painted it gloss white. The little girl figure was peeled off my art car and the hearts & little basketballs came from Hobby Lobby. The shoes are glued on with E6000, a glue so strong that it will hold a bad marriage together. The shoes are glued to a collage of contact photos from the wedding.
So, to a couple that I love and admire and to a man who has given so much, Happy 11th Anniversary. I owe you, Paul. You always make me look like I know what I'm doing.

Phil

Operation FULL MAILBOX

2008-09-11T10:21:00.003-05:00

Yesterday Paul got a couple of cards in the mail, and he had me read them aloud a couple of times and really looked at them. I could tell it meant a lot to him. Patty mentioned this address in her previous post. If you are willing, put a card in the mail to Paul. A postcard, a short note, anything. I think it would make his day! Here is the address again:

Pate Rehabilitation Brinlee Creek

10057 Country Road 472

Anna, Texas 75409

Many thanks!
Willie

Monday, Sept. 8

2008-09-08T08:22:00.003-05:00

We got through the weekend, but with no therapy scheduled and still all new faces at Pate, it was a little difficult. I had hoped at Pate that the therapy would continue through some of the weekend because I always feel we build up momentum during the week and then lose it with two days off. Unfortunately, the staff feels that weekends are family time - not to say that is bad! - I just want Paul to stay challenged constantly and think he gets bored (even though we try to stay busy).

It is wonderful that Paul is really more aware of what is going on but I also think he is slowly realizing what has happened and what it means. He is trying more to communicate and using words more often but also gets frustrated when he is trying to tell us something and it is not coming out right. As hard as it is, we all know that it is a good thing because it means he continues to progress and I keep telling him that this is all temporary and his next stop will be home.

The other day, we went through the "Get Well Paul" sign-in book we have for visitors and I talked about everyone who has shown up and offered support and help. He seemed really surprised and, I could tell by his facial expressions, touched yet also pleased with himself. He has always claimed to hate being in the spotlight but secretly loves it. I am also going to start from Day 1 and read him all the blog messages.

I am excited for things to really get started at Pate, for Paul to get into a routing and to get more comfortable in his surroundings. I ask that anyone planning to visit should do so after 4:00 during the week and anytime on weekends but that you contact me ahead of time to ensure that he is up for visits or not busy eating dinner or working. Please e-mail me at patty.jerde@yahoo.com.

Also, anyone wanting to send mail to Paul, the address is:

Pate Rehabilitation Brinlee Creek

10057 Country Road 472

Anna, Texas 75409

Thank you for your support and for being a part of this journey with us.

Patty

Some new (old) pics of Paul in the sidebar

2008-09-08T08:19:00.002-05:00

Here's one of the new pics, courtesy of Tom Hair, the first person to hire Paul as an intern in graphic design. And no jokes about Patty having a bad hair day. :-)

There are a few others in the sidebar. Thanks Tom!

Saturday, Sept. 6

2008-09-06T09:52:00.002-05:00

Paul is now getting settled at Pate and I would be lying if I said the transition has been easy for either me or Paul. I think traveling to the new environment and being around all new people has been confusing for Paul and, seeing that, has been hard for me. There are two housing areas at Pate, one for more independent patients and another for those that are not self-sufficient and need round-the-clock care, which is where Paul is right now. There are several patients there in far worse condition than Paul, which reminds me of how thankful I am for Paul's progress but is also hard to see. I also know that Paul will continue to progress and it will only be a matter of time until he moves to "Hilltop," the housing area for more independent patients, but it may be awhile. Meanwhile, we are getting acclimated and tonight I plan on staying overnight with Paul (Buzz is at his cousin's house) and we'll celebrate our 11th wedding anniversary.

This weekend, I think it is best if Paul's visitors are just family and close friends. Please call me ahead of time if you plan on making the trek to Anna.

Please keep praying for Paul's recovery. Your prayers have really made a difference!

Patty

Sept. 4 - Paul Moves to Pate Rehab in Anna, Texas

2008-09-03T22:23:00.004-05:00

Paul is being moved today to Pate Rehabilitation, a residential treatment center located on a 96-acre ranch in Anna, Texas (which is located about 35 miles north of Dallas). At Pate, the treatment program focuses on transitioning traumatic brain injury patients back into their everyday lives. In other words, Paul will be spending more than six full hours a day (as opposed to three) doing the same type of therapy he was doing at Baylor so that he can eventually come home. However, Pate takes the rehab situation a step further and allows the patient more time to begin acclimating to everyday life. As sad as we are to leave Baylor, we've been assured by the staff that Paul will benefit from moving on to Pate, where he will actually be working much harder.

We are not sure of how long his stay at Pate will be, but most likely it will be more than a month, if not several months. As long as Paul continues to progress, I don't care how long it takes. He got off to a slow start when he first arrived at Baylor Rehab, but his progress these past 10 days or so seems to have surprised the staff. I believe that now it is just a matter of time and hard work on Paul's part (something he already has embraced now that he can) before he begins to overcome the apraxia. I don't expect him to be chatting up a storm or strolling across a room any time soon, but I am very hopeful that he will in time. He continues to get stronger physically and he also has been saying more words, however it still very difficult for him.

Although Pate is quite a distance from Dallas, it is located on a beautiful, scenic and serene ranch. There is a lot of wide open space and a large rec center for visitors that includes a big-screen TV, couch, pool table, air hockey, fooseball, and popcorn maker. All of which is much more compatible to visits by a hyperactive 6 year old than a hospital setting where many of the patients are elderly and learning to walk after surgery. Aside from Pate being a good thing for Paul, I am sure that my blood pressure will go down during visits with Buzz and I know that Buzz will have more fun.

Once Paul gets settled, I'll let everyone know his schedule and the best visiting hours.

Thank you, everyone, again!
Love, Patty

Patty's going to kill me

2008-08-29T11:08:00.004-05:00

But when you have retro photos of this caliber you gotta post 'em, right?

Get well soon, Paul, and you can help prevent pictures like this from being shared in the future. :-)

Your pal,
Willie

The Jerde Cup!

2008-08-27T09:08:00.001-05:00

Update - Wednesday, August 27

2008-08-27T08:25:00.002-05:00

Today is Buzz's birthday so we'll be celebrating tonight as a family at the hospital. I'd like to request that Paul get no visitors tonight.

In other news, yesterday was pet therapy day at the rehab center. Dogs are brought in to interact with the patients. Although I wouldn't say that Paul is a dog person, he really seemed to connect with a couple of the dogs, feeding them treats. The therapist even got Paul to throw a tennis ball for one of the dogs to catch. This is significant because the apraxia has been keeping Paul from being able to throw. Until yesterday, he would hold a ball out and seemed to be trying hard but just couldn't let go of the ball or make a throwing motion. Another small, but significant, step in his recovery.

Thank you everyone for your support and wonderful comments.

Patty

Update - Monday, August 25

2008-08-25T21:02:00.006-05:00

Paul has had a great last few days. His command following has improved and he seems to much more aware of those around him, smiling, and giving high fives and thumbs up. We are also learning more about the some of the effects of a traumatic brain injury.

The doctors have determined that Paul suffers from a condition called apraxia, which is the inability to perform intentional movements although there is no sensory or motor impairment. For example, Paul has the strength and coordination to do certain tasks and seems to know what he wants to do but his brain cannot always make his body do what is necessary to complete the tasks.

He also has apraxia of speech, an impairment caused by damage to the area of the brain that controls the voluntary, exact movement of speech muscles. Basically, this means that he can say a few words (and actually has) but can say them when he is uncomfortable or in distress. It is much more difficult for him to speak when he is really concentrating and trying. However, the speech therapist continues to work with him and focus on ways he can again begin to control his speech.

I say that he has said a few words but I would not say that he is talking. It is great to hear his voice, even though it has been single words, such as "yes" "no" and "dammit" (once when he was really frustrated). The best word he has said yet though is "Buzz," which he said when Buzz was visiting the hospital and on the floor coloring. Paul was watching him, said Buzz's name, and then reached out his hand toward Buzz. He kissed Buzz's hand, hugged him, and stroked his hair. It was a wonderful moment for all of us. Even the nurse, who walked in around that time, got teary eyed.

You probably are wondering if Paul's current actions mean that he is officially "awake" now. He is not. There are several ways that the doctors determine this and all involve different phases or stages, which Paul is slowly working his way through. His actions these past few days are very encouraging and positive though and we can definitely say he more wakeful if not awake.

One thing that the doctors and nurses have stressed is that too much excitement or noise can agitate Paul. So, please keep visits to about 15 minutes or so.

Thank you again for your support.

Love,
Patty

Help Paul - donate to the Dream Fund!

2008-08-19T17:25:00.009-05:00

Many of you have graciously asked how you can financially help the Jerde family to ensure the best care and recovery for Paul. We’ve connected with DREAM Fund, a nonprofit foundation that supports those in the communications industry who have experienced a life-altering event. Not only will the foundation be helping Paul, but they also have a website with the ability for donations to be taken online. Additionally, you can choose to make a one-time donation or a recurring donation depending on your preference. The online donation form can be found here. Please just be sure to fill out “Paul Jerde” in the “Directed Donations” field at the bottom of the form to ensure the donation will be distributed directly to Paul’s family.

We can’t thank you enough for all the support and for your contributions. If you’d like more information on DREAM Fund, you can visit their website at www.dreamfund.org or feel free to call Holly Mason at 214.663.8817.

Saturday, August 16 - Paul's Story in the Dallas Morning News

2008-08-16T07:52:00.002-05:00

An article about Paul and the community's efforts to promote cycling safety is featured in today's Dallas Morning News. The article mentions a golf tournament being held by friends and family to raise money and further raise awareness. The tournament is Tuesday, Sept. 23, at Tour 18 golf course. Please continue to check the blog for more information on the tournament and how you can participate.

Thank you!

Update - Thursday, August 14

2008-08-14T07:10:00.004-05:00

Paul has now graduated to pureed hospital food (not exactly Taco Diner but better than just tube feedings). We still are carefully watching to make sure that he swallows correctly. He gets three meals a day, which either I, or the nurse, help him eat. We also are working toward him holding the fork on his own but that will take some practice. At this point, he doesn't eat a lot so the tube still is in place in his stomach.

He continues his rigorous therapy sessions as well and is out of bed for most of the day. He can sit more comfortably in the wheelchair for long periods of time so, now that the weather has cooled off, I’ve taken him outside several times. I think he enjoys the fresh air and this morning put his head back on the headrest and dozed for about 15 minutes during a break between sessions.

His doctor here is Dr. Mary Carlile, who is very highly regarded in the field of traumatic brain injury recovery. She has prescribed several neuro-stimulus drugs so he is much more alert now and aware of his surroundings but still is not responding to commands consistently. It is hard enough for me to understand and even harder to explain, but Paul can put a baseball cap on and take it off; hold a cup and sip through a straw; and fluff his pillow under his head until he is comfortable but he still has not fully regained consciousness.

Something that I find difficult to handle is that the therapists, doctors, and nurses don’t get to see and appreciate Paul’s charismatic, and often very complicated, personality (anyone who knows him well will most likely agree). We have photos up throughout the room and also have displayed some of the professional work he has done. Today, I passed out to the staff a recent article from HOW magazine, in which Paul was interviewed about the creative jams (creative team-building sessions) held at MasonBaronet. I’ve always known that Paul’s brain was more complicated than most people’s (life with Paul is never boring) but want to share this information with everyone here. This is no generic patient they are dealing with and I want them to be creative when they are working with him as well.

As I’ve said so many times, please continue to pray for Paul and his recovery. I know that, once he fully regains consciousness, there will be nothing stopping him.

Love,Patty

Update - Thursday, August 7

2008-08-07T16:33:00.003-05:00

I feel very lucky that we are at Baylor Institute of Rehabilitation as it is one of the best in the country. Our first week here is coming to an end and, just as we expected, the therapists here are working Paul hard. Weekly conferences, which include the therapists, neuropsychologist, and the doctor, are held to keep me abreast of Paul's current therapy and progress. Our first conference was yesterday, and they reported that Paul is inconsistent with command following but is starting to attend to automatic skills. Automatic skills examples include that we can hand him his glasses and he'll put them on, he'll take the phone and put it up to his ear and then flip it closed, and he'll raise his arm to help when his shirt his being taken off. Right now, the speech therapist is working on developing a yes/no communication system but have not yet developed a reliable way of getting Paul to communicate.

As posted on Tuesday, Paul moves around a lot and is very restless. Because he is getting so strong, he is now in an enclosed bed to keep him from pulling himself out of the bed. The best description we've come up with is that it looks like his bed is in a bouncy house. But, this keeps him safe and seems to be the norm around the rehab facility as many patients have their own bouncy houses.

We now have a private room, room 300, and expect to be here at least through the month of August. Again, please keep in mind that Paul is busy throughout the day with therapy so visitors are encouraged to come in the late afternoon and evenings. I also ask that visits be kept to about 15 or 20 minutes to keep Paul from getting overwhelmed.

Thank you all again for all of your support and continual interest in Paul's recovery.

Love,

Update - Tuesday August 5

2008-08-05T09:12:00.002-05:00

Paul is adjusting to his new home at the rehab facility. His therapy sessions start at 9:00am and, aside from a lunch break for the therapists from 12-1, don't stop until after 3:00. On Monday, his speech therapist gave him thickened apple juice, much like apple sauce, and he swallowed it easily. So, she plans to continue testing him through the week and hopefully get him on something more solid soon. In the meantime he continues to be fed through his feeding tube, which he often tries to pull out with his left hand.

His speech therapist still would like him to more awake and responsive, something we continue to hope and pray comes soon. And we want him to start talking, of course.

His "purposeful" movements continue as well. Because he tries to pull out his feeding tube (and sometime his catheter) with his left hand, he has been wearing a "mitten" on his left hand that looks a lot like a Snoopy paw, which prevents him from grabbing anything. He has recently figured out that he can take the mitten off with his teeth if he works at it long enough, if the velcro is hanging off even a little. While this is a major pain for those watching him, it is also encouraging in terms of his intent. He also consistently repositions his favorite pillow, and sometimes pulls himself so that he can lay on his side.

His brother Jim (and Jim's family) were in town from Kansas again this weekend and that was great for Paul and for Buzz.

To all family and friends, thank you again for ALL that you do. For your comments and all your love and support. It means the world to all of us.

Love and blessings to you.

July 31 - Paul Moves to Rehab

2008-07-31T15:22:00.004-05:00

Paul was moved to the Baylor Institute of Rehabilitation today. This is great news as it means he is medically stable and can tolerate three hours of therapy sessions daily. The move seemed to come abruptly, we were just getting settled but I have been assured that rehab is where Paul needs to be right now. He still is not fully awake but continues to progress physically and, I think, is getting restless being in bed most of the day. I am very excited about his move to rehab but also very nervous. From what I hear, Paul is about to receive the workout program of his life. I have no doubt that Paul has the determination to succeed and won't give up until he has reached his full potential.

Visiting hours are until 9:00 p.m. and I would like to, again, requests that visitors come late afternoon or evenings. We are in a semi-private room right now so please take into consideration that Paul has a roommate. The facility is located directly behind Baylor Specialty Hospital at 3505 Gaston Avenue.

Once we have met with the therapists and the doctors tomorrow, I'll know more about Paul's new schedule and relay if there are better times to visit.

Thanks again for your support.

Love, Patty

Update - Wed July 30

2008-07-30T15:51:00.001-05:00

Sorry we haven't posted in the last couple of days. There hasn't been a whole lot new to report. Paul continues to do his daily therapies, and some days he is more responsive than others. Today he seems to be a bit more agitated than usual, which could be because of some pain or some discomfort from the food he gets through his feeding tube. He slept right through the visit from the speech therapist, even though she was tempting him with a chocolate flavored lollipop. Some days are just better than others.

They are going to remove his PICC line today which is in his left arm. PICC stands for Peripherally Inserted Central Catheter, and it can be used for giving treatments like antibiotics and intravenous fluids. Since they haven't needed to use it lately (and since it could be a potential infection risk) they decided it could come out. So one less contraption to deal with. :-)

Thanks again to all of you for your comments, love and support. It makes such a huge difference!

Update - Sunday, July 27

2008-07-27T17:16:00.007-05:00

We've now been in the private room for over a week and it is great. Paul'stracheotomy hole is now nothing but a tiny scab and he no longer receives any kind of breathing treatment. He is now moving his right arm much more although he is tensing it up. He gets very fidgety at times and pulls at theblanket and at his gown. He keeps rearranging one around his head; it lookslike he is trying to make himself more comfortable. One of the therapists commented that this was “purposeful” movement, which is good.

His therapy now involves daily trips in a Stretchair (photo on left), an industrial-type wheelchair that allows Paul to be moved safely from the prone position in the bed to safely sitting upright. He is then taken to the workout room, where the therapists work with him. He is seated upright on a mat while one of the physical therapists holds him up from behind while another sits on a chair in front of him. At this point, he cannot hold his head up (although it is getting much stronger) so the therapist must hold it up while also holding him from behind. The goal is for him to work up his strength and to relearn to sit up.

Looking at my notes from the past week, I can see the progress he has made. It is sometimes hard to tell since I am here every day so it is nice when a visitor, who hasn’t seen him for a week or so, comes by and talks about how good he looks and all the changes.

Thanks again to everyone. I am thankful everyday to have so many people rallying around us. I can't even imagine what it might be like without allof your support.

Love, Patty

Update July 24 - and Paul wins huge award!

2008-07-24T12:08:00.002-05:00

Paul continues his daily physical therapy sessions and is getting stronger every day toward holding himself up while sitting. The sessions are intense and it is evident by the look on Paul's face that he is working very hard. No more lollipops this week, but the speech therapist has given him large Q-Tip swabs that are coated with lemon juice and refrigerated. He doesn't seem to enjoy these as much as the lollipop but, again, appears to like the sensation of taste and cold.

In other news, Paul's cool logo for the Ball Hogs (click here to see it) was accepted into the Communication Arts Design Annual. This is one of the highest creative awards you can get anywhere. CA is considered the bible of the creative communications industry. Congrats to Paul for his creative excellence!!

Update - Monday, July 21

2008-07-21T14:38:00.003-05:00

Paul had a good weekend at the hospital. We feel certain that he smiled a couple of times and feel he was very engaged while looking a family photos and did seem to focus on television and the British Open, despite Greg Norman's third place finish. Buzz was at the hospital for several hours with me yesterday. Although he spent a good deal of time playing on the computer, he had a great visit with Paul, even climbing onto the bed and sitting next to him to watch Robots on TV.

I am happy for a new week to begin though as during the weekends, the therapists are not here so he doesn't get his usual exercises and therapy sessions. Right now, since Paul is not completely awake, he cannot be given food or drinks so he gets his nutrition through a feeding tube. However, because he does seem more alert, the speech therapist gave him a green apple Dum-Dum lollipop to suck on this morning and he seemed to really enjoy it. He loves apples but I am sure that, after five weeks of not tasting anything, just having a little variety was heavenly.

As always, I am very hopeful about Paul's recovery and encouraged by the small changes that take place. I am also very thankful that we both have wonderful families to support us and such a great group of friends that continue to encourage us every step of the way. Thank you!

Love,
Patty

Update - Friday, July 18

2008-07-18T08:44:00.006-05:00

Paul was moved last night to a private room. He is now in room 201, which is great as there is much more space and privacy. We'll now be able to play music for him without having to use the headphones, sit more comfortably with him and talk a little louder, and I plan to bring Buzz up to the hospital this weekend for another visit. And, of course, between therapy sessions this morning, I'll keep the TV tuned into TNT, so Paul can watch/hear/hopefully sense the British Open. Even though Paul will be disappointed that Ernie Els probably won't make the cut, he should be interested that Greg Norman is leading the pack. Let's hope the tournament stays exciting throughout the weekend. Thank you, everyone again, for your interest and constant support.

Love,
Patty

No More Tracheotomy!

2008-07-15T16:14:00.004-05:00

Finally, Paul's tracheotomy was taken out yesterday. There is a now just gauze, which will stay for a few days until the hole closes up. The doctors also took him completely off oxygen so no more nasal canula (tubes in his nose). So now he looks even more like himself and has fewer tubes and things to grab at, and he's breathing completely on his own. Another small but positive step, and we are grateful for all of them.

Thanks again for all your positive thoughts, comments and prayers. You are all part of Team Jerde, and it's the best team in the world.

Love and blessings,
The Jerde and Hatfield families

Update - Monday, July 14

2008-07-14T13:55:00.004-05:00

There's not a whole lot of new news to report. Paul is about the same at the Baylor Specialty Hospital, still breathing without the aid of his tracheotomy tube, and doing various therapies during the day. We've been giving him things to smell, like coffee, garlic and cinnamon, and sometimes he seems to respond to these favorite aromas. He's definitely never gone this long without caffeine. :-)

It's been 4 weeks now, and we really appreciate all your love and support (and your comments).

"Faith is the realization, on looking at what seems only strewn before us, that it has instead been set before us, and that it doesn't block our way, but IS our way." -Paul Greenberg

The Waking Up Process

2008-07-13T11:02:00.001-05:00

Thank you so much for all your prayers and support. I feel like it is important to explain what we are going through with Paul now. We have said that Paul’s eyes are open much of the day, and he is more alert, but I think it is important to explain the reality of “waking up” from a coma-like state. I have had to learn more than I ever wanted to know about this. It is nothing like the movies where a person is “sleeping” and then suddenly “wakes up” and is just the way they were before the accident. I have learned that this is a long, slow process. There are various stages. Doctors even talk about levels of consciousness, as opposed to coma. People move through these levels at their own pace. While we do see progress, and Paul’s eyes are open from time to time, we don’t really know how aware he is. There is so much unknown at this point, it is hard to describe what is happening. One constant we hear from the doctors and nurses is that no matter his levels of consciousness, we should always speak positively around him. People who have recovered from similar injuries have said that they heard and understood what people were saying around them. Therefore, we would like to keep conversation about Paul’s condition upbeat and positive. I hope this helps you understand about Paul’s condition.

Love,
Patty

Update - Wednesday, July 9

2008-07-09T18:40:00.003-05:00

Paul is getting settled in his new digs. He started his new regimen today, which included the therapists sitting him on the side of the bed twice, continued breathing treatments, and exercises. The staff seems to have made it their collective goal to prepare him to go to rehab, which makes me happy as it is our goal as well. As his testing and therapy sessions take place in the mornings and early afternoons, I'm asking that visitors come by between 3:00-9:00 pm. This will ensure that the focus can stay on his therapy during the day, and friends can spend quality time with Paul in the evenings. Thank you again for your continued support.

As always your comments are a great boost to us and to Paul.

Love,
Patty

Paul Moves to Baylor Specialty Hospital (room 206B)

2008-07-07T17:49:00.003-05:00

Today, Paul was moved from Baylor Medical Center to Baylor Specialty Hospital at 3504 Swiss Avenue. It's just about 2 blocks north of where he was before (and a much better elevator situation!). Here he will be followed by a physiatrist, a physician who specializes in physical medicine and rehabilitation. Paul will receive daily care from respiratory, physical, occupational, and speech therapists. Our goal now is for Paul to continue to recover and get to a point where he can actively participate in rehab.

The doctors also capped Paul's tracheotomy tube so he is completely breathing on his own through his mouth and nose. Right now, he is sleeping and snoring away as if he were napping on the couch at home.

Visiting hours at Baylor Specialty are from 10am to 9pm and Paul is in room 206B. The first couple of days we request no visitors as he is being evaluated and will begin his new care plan. Thank you again for your support and we'll continue to keep you posted on his progress.

Love, Patty

Update Sunday July 6

2008-07-06T16:38:00.004-05:00

For those of you who've been to see Paul recently, you know that at times he has one or both of his eyes open to some extent. This has been happening for a few days, and while it's very encouraging to see, the doctors have let us know he is still not "awake", which we are all still hoping and praying for. It's hard to know exactly what Paul is able to see or recognize, but it has been comforting for all of us to see him make these small signs of progress.

As of today, he is still breathing partially through his tracheotomy tube, but they have removed the oxygen support, which is another positive sign. It's possible that if he continues to do well with his breathing, they will remove the trach tube completely in the next couple of days.

Today Buzz got to visit his dad for the first time. He stayed for a while, and the visit went really well. Of course Buzz is curious about every contraption in Paul's room, put a number of things in Paul's hand so he could feel stuff, and was also interested in finding goodies to eat. It was a great visit.

It's been a quiet holiday weekend and Paul is resting comfortably now. Paul's brother Jim has been in town for the weekend and giving Patty a break by taking some of the night shifts.

Thanks again to all of you for your comments and your love and support.

Love and blessings,
The Jerde and Hatfield families

Update Friday, July 4

2008-07-04T12:13:00.000-05:00

Paul continues to progress with his recovery. He has more wakeful moments when he seems much more aware of his surroundings and his movements are increasing. Yesterday, he began putting his hand on his face, feeling his mouth and nose, and rubbing his eyes and the back of his neck. (Many of the same mannerisms we've all seen after a particularly challenging meeting with a client or bad shot on the golf course.) He also has progressed from wiggling his toes to now moving his legs and even lifting them up and often crossing them. Please continue positive thoughts and prayers for Paul throughout the weekend. His room overlooks Fair Park so I'll be watching the fireworks display here and can't wait until next year when Paul, Buzz, and I can watch them together. Have a good weekend and stay safe!

Love,
Patty

Update Wednesday, July 2

2008-07-02T12:22:00.003-05:00

Paul is resting comfortably and still about the same. There are periods of time where he is more active and others where it seems as if he is sleeping/resting. We really appreciate your visits to the hospital, please be aware there may be some doctor or therapist visits that may require visitors to wait outside in the lobby. As Paul progresses there is increased focus on his rehab and exercises, which are a critical part of his recovery process. Thank you all so much for all your love and support. We couldn't do this without you.

Love,
The Jerde and Hatfield families

And here is a photo of brother-in-law Bobby and nephew Robert Paul Hatfield, born June 30, 2008, Paul's 44th birthday.

Paul's Picnic Pix!

2008-07-01T11:22:00.001-05:00

Click here to see all the photos. Hope you enjoy them!

Update June 30 - Paul's new nephew!

2008-07-01T06:47:00.002-05:00

Paul spent his 44th birthday in his new private room with visits from family and friends. He continues to grow stronger and make progress moving his hands and feet. Paul also became an uncle (again) today when Patty's brother, Bobby, and his wife, Karen, had a baby. Robert Paul Hatfield was born this morning at Medical City in Dallas. Please continue to pray for Paul to wake up soon so that he cane meet his new nephew, namesake, and birthday mate. Thank you again for all of your support and well wishes!

Happy Birthday Paul!!

2008-06-30T15:21:00.003-05:00

Paul turns 44 today. Send him a birthday wish, sing him a song, or give him a birthday spanking (in your imagination, of course).

Paul, we are all sending our love and hoping this will be the year of miracles for you. Rest and keep getting stronger this birthday!

(reminder, if you have any photos of the picnic that you'd like to share, please email them to willie@williebaronet.com)

Paul moved to private room

2008-06-29T13:16:00.002-05:00

Fyi, Paul has been moved to room 1103 on the 11th floor in the same building he's been in.

In other news, Paul turns 44 tomorrow!! Please send him some happy birthday wishes.

Thanks and blessings to all of you.

Update Saturday June 28

2008-06-28T18:50:00.003-05:00

First of all, the picnic was a huge success and we'll be posting more on that and many more pictures once we collect them all. Thanks to ALL of you for sending your love and for the very creative posters! The bridge looked incredible after they were all up. :-) So check back for more details. Thanks to Samantha and Holly for organizing this wonderful event.

Today Paul is in a holding room (still in ICU but in a different area) waiting for a private room on another floor in the hospital. This is because he's been breathing on his own for over 48 hours, which is great. We'll keep you posted on his location. He continues to be stable, and moving his hands and feet at times. Keep sending your love and prayers for him to regain consciousness soon. Your love is helping us all.

Today on the channel 5 news they did a short story on bicycle safety at White Rock Lake, and as part of the story they talked about Paul. They showed a great photo of him, talked about the picnic, and Paul's sister-in-law, Katie, was interviewed and did a great job of sharing the story and expressing that increased bicycle safety might prevent other families from having to go through this.

Again, we can't thank you all enough for all you're doing to support Paul and our families. Blessings to all of you.

Sincerely,
The Jerde and Hatfield families

Update Thursday June 26 and Two Reminders

2008-06-26T18:16:00.006-05:00

Today the doctors took Paul completely off the ventilator and he is breathing on his own with only some oxygen support. If he continues to do well, he will probably be moved out of ICU and into a private room in the next 24-48 hours. He still looks good, is active with movement in his hands and feet, and we continue to wait for him to regain consciousness. Please continue to think of Paul and pray for him to wake up.

Reminder 1: Paul's picnic is tomorrow at White Rock Lake at 6:30 pm. Click here for details. Please attend and support Paul and safe cycling!

Reminder 2: Keep leaving comments, it means a lot to Paul and all of us.

Thank you so much!
The Jerde and Hatfield families

Update Wednesday June 25

2008-06-25T16:09:00.001-05:00

Today they removed the tube in Paul's head that was measuring his cranial pressure, since it had been stable for the past few days. They had shaved the front of his head to put it in, so now he's got a very groovy haircut (and by groovy we mean embarrassing). Paul is breathing quite a bit on his own now (about 60%), and his grip in his left hand is very strong. Keep praying for him to open his eyes soon! Thanks so much for all your love and support!

Yesterday Paul's sisters Kathy and Beth, and friend Cindy took a field trip to see where the accident took place, and to tour Paul's office at MasonBaronet. While by White Rock lake we stumbled upon this wonderful sign offering some love and encouragement to Paul. Thank you friends of the lake!! :-)

A message from Buzz

2008-06-25T06:05:00.002-05:00

Could he be any cuter?

And don't forget to check below for info about Paul's Picnic this Friday, 6:30 pm at White Rock Lake! Hope to see you there. :-)

Paul's Picnic - This Friday!

2008-06-24T10:11:00.002-05:00

Friday evening, June 27 beginning at 6:30
White Rock Lake - Mockingbird and Buckner
There is a turn to the right just after the bridge and before Buckner. We will meet there in a park area with a few picnic tables.

There has been a wonderful response of family and friends to Paul's accident. We are planning an impromptu evening to gather and have a picnic to raise awareness and support for Paul, Patty, Buzz and their families. This will be a good time to discuss ideas about how offer help and about future support.

Please bring your own picnic and/or snacks we will eat from 6:30 - 8. 8-8:30 we will VERY CAREFULLY hang posters all along the bridge at the scene of the accident.

We plan to make posters to absolutely cover the bridge where the accident happened. Tell all your friends, bring as many posters as you can make 2, 10, 20...have your kids make posters. You can also make your posters at the picnic if you like, just be sure to bring your own supplies including tape. They can read anything about Paul, cycling, 7 people in 7 days...anything you feel is appropriate but please keep it appropriate - this should be a positive event.

If you are unable to attend you may drop the posters off at Rovillo + Reitmayer and we will take them for you.

If you have any questions please contact Samantha Reitmayer (817-707-6799) or Holly Mason (214-663-8817).

Update Monday June 23

2008-06-23T14:46:00.002-05:00

Paul remains unconscious yet stable in ICU. This morning, the doctors removed the chest tube, which shows improvement in Paul's lung. They also performed a tracheotomy in order to remove the respirator tube from his mouth to protect his vocal chords. The doctors feel this will be more comfortable for Paul and decrease the chance of infection. He was sedated during the procedure so we don't expect much movement today. Thank you again for all of your support and well wishes.

Love, Patty

Update Saturday June 21

2008-06-21T13:56:00.004-05:00

Paul's condition is about the same. He's still unconscious but signs are stable and he looks good. His mom, brother and 2 of his sisters are in town now, and his other sister is coming in tomorrow. His niece and nephew are here too. We so appreciate all your love and support for Paul. Keep praying and sending good thoughts his way.

Sincerely,

The Jerde and Hatfield families

Picnic for Paul Friday June 27

2008-06-20T15:31:00.002-05:00

Save the date! On June 27 at 6:30ish pm we'll be having a picnic at White Rock Lake to honor Paul and to heighten awareness for bicycle safety. Details are still being worked out but save the date and check back for more information.

Thanks for all your support!
Holly Mason and Samantha Reitmayer

A message from Patty, June 20

2008-06-20T09:09:00.003-05:00

I had a chance to read more of the messages on the blog last night and I'm completely overwhelmed. I don't know how to express how much your words, thoughts and support have helped me and my family this week. It is a gift to be able to read your memories and stories of Paul and what he has meant to so many of you and to hear from people from all stages of Paul's life and our life together. Please continue to keep us in your thoughts and prayers as we travel through this journey.

Love,
Patty

How you can help

2008-06-19T16:40:00.007-05:00

1. Donate through the Dream Fund

Click HERE for more information.

2. Other donations

Some of you have already made financial contributions to help the Jerde family. Thank you so much again! Holly Mason has set up an account to handle this. If you are wanting to contribute you can make out checks to:
Paul Jerde c/o MasonBaronet

They can be mailed to:
MasonBaronet
1801 N. Lamar, Ste. 250
Dallas, Texas 75202

We can also accept credit/debit cards. You can email the credit card info to: gaby@masonbaronet.com or call 214.954.0316 (extension 225) with the information. Records will be kept of all donations and given to the family. And Patty will have full access to this account.

3. Comments and photos

Please continue to leave comments for Paul on this blog, as we periodically read them to him. :-)

If you have a photo of Paul you'd like to share, please email it to willie@williebaronet.com

Again, thank you all so much for all you do. The main thing is that you love Paul and are keeping him in your thoughts and prayers.

Update Thursday June 19

2008-06-19T13:16:00.004-05:00

First of all, thank you for all your prayers and good wishes. It helps a great deal. We met with doctors yesterday and they confirmed that the injuries to Paul's brain are very serious, and the most important thing is that he wake up as soon as possible. They have removed the neck brace and given him a shave, so he's looking good. And his vital signs are all stable as well. Thanks so much for all your love and support and keep the comments coming. We have printed them out and read them to him periodically, which is great. The doctors have asked for visitation to be very limited and quiet today, as he has been through some tests and is in deep rest.

Thank you all SO much.

With love and gratitude,
The Jerde and Hatfield families

Prayer for Paul - Thursday, June 19, at noon

2008-06-18T22:00:00.002-05:00

Tomorrow (June 19) at NOON (Central Standard Time), we are asking everyone to please say a prayer for Paul, specifically for healing the trauma to his brain and for him to wake up. We are hoping for power in numbers, so please send this message to anyone who knows Paul or his family or who might like to help. We feel strongly that your prayers are helping and we appreciate all of your support and help.

Thank you,
The Jerde and Hatfield families

Wed June 18 - Requesting no visitors today

2008-06-18T12:53:00.002-05:00

To all the wonderful friends and colleagues of Paul, today is a day of important doctor visits and the family is going to be in with Paul most if not all of today. Please continue to send your love and support and we'll keep you posted on Paul's status. Thanks so much for all you've done and for all the love you've shown for Paul.

Sincerely,
The Jerde and Hatfield families

Petition in Support of Bicycling in North Texas

2008-06-18T07:28:00.002-05:00

From BikeDFW - http://www.bikedfw.org/

7 cyclists in the past 7 days have been hit by cars in the Dallas/Fort Worth area. 2 were killed, 1 is in critical condition in the ICU (Paul) at last report.

It's all just too much. Recently a city council person said "Well there are not many people in my district who want to ride bikes anyway" Let's prove him and a whole host of others like him wrong.

This isn't just for the roadies or the mountain bikers - although we want you to sign it! It is for your neighbors whose kids ride to school, it is for the older couple on the corner who ride around the block. It is for anyone who in any way at all wants to see bikes on the streets without fear in North Texas. It is for those who would rather ride off the street, it is for those who will ride anywhere - and mostly - for those who won't ride at all given current conditions.

Please forward this to everyone and anyone - it will not be used for commercial purposes, it will be used to answer comments such as the one above with "Well sir, actually there are 1217 people in your district who WANT to cycle!" and be able to prove it.

Sign the petition -
http://www.bikepetition.eventbrite.com/

Posted courtesy of Holly and Jay Mason

Paul inspires huge victory

2008-06-17T16:04:00.003-05:00

Paul is a key player on our YMCA league basketball team, the Ball Hogs. He designed the ultra-cool logo for our team you see here on my sweaty t-shirt. Last night we played the team that beat us last season in the finals. We were playing without Paul and a couple other of our key players. Even with no subs, we were inspired by Paul's mojo. To give you an example, in last season's semifinals Paul sustained a head injury which later required 7 stitches. He wrapped a towel around his head and came back in saying "I'm ready to go!" So you can imagine how much we missed him last night, and with him in mind we beat the other team by 7 points! Jerde! Jerde! Jerde!

Love you Paul, get better soon!

Willie

Update Tuesday June 17

2008-06-17T15:08:00.003-05:00

Just wanted to let you all know, Paul is still stable, though not much has changed. He's still unconscious and not responding yet, but the doctors tell us this can take some time. Thank you so much for your support and messages and visits. Please keep praying for Paul to open his eyes soon. Thanks for loving him so much. It means a lot to all of us.

Patty and Buzz

Tuesday morning, June 17

2008-06-17T13:56:00.006-05:00

I will try to update this as often as possible, this is kind of new to us.

Last night I stayed with Patty. She has not left the hospital since we came in on Saturday so she is understandably exhausted but holding up as well as can be expected. The first two night they slept in the lobby of the ICU but last night we were able to get an "in house" hotel room and so she got a little sleep.

Paul's brother, Jim, and his wife, Laurie got in from Kansas last night and I know Patty was relieved to see them and have them here with her. His mother, Kay, and sister, Mary are flying in from Cedar Rapids this afternoon to be with her too.

We are lucky to have a wonderful trauma doctor, Dr. Paul Gray and have been told his is one of the best. His neurosurgeon is Dr. Kyle Doughty who has been consulting with Dr. Gray. The CAT scans show a little blood on the brain from the trauma and they are monitoring his brain for any swelling or pressure. He has a tube that can drain any fluids when this becomes a concern. This morning the pressure was ok.

Paul has not woken up yet. He has shown movement in his left hand and foot and right foot. We truly feel he has responded to Patty's voice. This morning she was talking to him and asked him to move his finger and we saw him lift his left pointer finger. They are looking for him to have more of these requested reactions. The doctors don't know when he will wake up and we just need to be patient and wait.

Paul is so lucky to have so many friends. There have been so many of you coming up to visit and offer comfort to Patty. She is so appreciative of all you have done.

Thank you so much,

Katie Lange (Patty's sister)

Buzz makes a wish

2008-06-16T20:23:00.003-05:00

Buzz is staying with his aunt Mary and Uncle Dave and their 3 kids. Mary took the kids out for ice cream after a long day of chasing Buzz. They walked out in front of the store and there was a fountain. The kids asked for pennies to throw in and make a wish. After they had thrown in their pennies Buzz's cousin Katie turned to him and said "I bet I know what you wished, Buzz, for your daddy to get better?" Buzz paused, looked at her and said "Actually I wished for more ice cream. Aunt Mary, can I have another penny?" :-)

Paul looks good

2008-06-16T20:11:00.000-05:00

Paul still has color in his face and is looking strong. Pray for him to open his eyes soon.

Amy - Patty's sister

You can leave a comment for Paul (and other readers) :-)

2008-06-16T20:02:00.001-05:00

To leave a comment, click on the word "comments" under any post. Or scroll to the bottom of the comments to where it says "post a comment". :-)

Where to visit

2008-06-16T19:50:00.001-05:00

Currently Paul is in the ICU at Baylor in the Roberts building (the tallest one in the complex) and is on the 4th floor. Visiting hours are usually open except for 6-8:30 am and pm (during shift changes). Only 2 people are allowed in to visit at one time. Baylor is located at Gaston and Washington just east of downtown Dallas.

What happened

2008-06-16T19:25:00.000-05:00

Saturday, June 14th, at approximately 12:00 noon Paul was riding his bike home going east along Mockingbird Lane in the right-hand toward Buckner when he was hit from behind by a light-weight pick-up truck. He was taken by ambulance to Baylor Medical Center in downtown Dallas. He suffered a severe head injury, three fractured ribs and a punctured right lung. He as been in the ICU and has not yet regained consciousness.